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Sante Publique (Vandoeuvre-les-Nancy,... 2024Professional activity represents an injunction to participate in the collective and sustains our identity. Being deprived of it can lead to social exclusion. At the same...
INTRODUCTION
Professional activity represents an injunction to participate in the collective and sustains our identity. Being deprived of it can lead to social exclusion. At the same time, the injunction to autonomy is prevalent in our society. The disabled person can suffer from social stigmatization and find himself in tension between disability/autonomy/work. Work is then essential to identify oneself as a worker and not as a dependent person.
PURPOSE OF RESEARCH
The participatory research presented has a dual objective: to give a voice to a stigmatized population - disabled workers - and their families; to understand and analyze with them the strategies used to work or remain in employment and the impact of these strategies on health at work and the relationship to risks.
RESULTS
Exchanges between the peer Group and the scientific team enabled us to refine the initial questions, to reformulate analyses, to modify communication supports, to make them more acceptable and accessible. This participatory approach has modified our research practices by guaranteeing that the people concerned by the research become actors in it.
CONCLUSIONS
For populations suffering from symbolic domination, participatory research makes it possible to restore the confidence of individuals and the legitimacy of experiential knowledge.
Topics: Humans; Disabled Persons; Employment; Occupations
PubMed: 38360773
DOI: No ID Found -
International Journal of Environmental... Oct 2022Active tourism improves human health and well-being regardless of age or disabilities. The paper analyses and describes current issues concerning the tourism of people... (Review)
Review
Active tourism improves human health and well-being regardless of age or disabilities. The paper analyses and describes current issues concerning the tourism of people with disabilities. The starting point is the currently insufficient availability of tourist offers for individuals with considerable motor dysfunctions. One of the causes for these limitations stems from deficiencies in transport means for people with disabilities. It was found that for a disabled passenger using public transport, it is crucial to consider its accessibility in the context of the entire transport system. Another cause is the limited popularity of innovative, atypical assistive equipment for people with disabilities. Those insights point out that novel assistive technologies need to be developed, as it is necessary to more effectively support the activity of people with disabilities in all areas of life, including tourism, as this enhances their social rehabilitation. This paper indicates the needs and describes and analyses examples of own original, innovative devices supporting the areas mentioned above of activity for people with disabilities. These analyses resulted in developing an algorithm to design innovative equipment, considerably expanding the tourism potential of people with motor disabilities. This design process focuses on the needs of people with disabilities and facilitates the development of novel classes of assistive technologies, thus promoting new areas of activity for all.
Topics: Humans; Tourism; Self-Help Devices; Disabled Persons
PubMed: 36361066
DOI: 10.3390/ijerph192114186 -
Journal of Bioethical Inquiry Sep 2022A key question in disability studies, philosophy, and bioethics concerns the relationship between disability and well-being. The mere difference view, endorsed by...
A key question in disability studies, philosophy, and bioethics concerns the relationship between disability and well-being. The mere difference view, endorsed by Elizabeth Barnes, claims that physical and sensory disabilities by themselves do not make a person worse off overall-any negative impacts on welfare are due to social injustice. This article argues that Barnes's Value Neutral Model does not extend to intellectual disability. Intellectual disability is (1) intrinsically bad-by itself it makes a person worse off, apart from a non-accommodating environment; (2) universally bad-it lowers quality of life for every intellectually disabled person; and (3) globally bad-it reduces a person's overall well-being. While people with intellectual disabilities are functionally disadvantaged, this does not imply that they are morally inferior-lower quality of life does not mean lesser moral status. No clinical implications concerning disability-based selective abortion, denial of life-saving treatment, or rationing of scarce resources follow from the claim that intellectual disability is bad difference.
Topics: Abortion, Eugenic; Bioethics; Disabled Persons; Female; Humans; Intellectual Disability; Pregnancy; Quality of Life
PubMed: 35679004
DOI: 10.1007/s11673-022-10190-y -
Rehabilitation Psychology May 2019Rehabilitation psychology uniquely incorporates a holistic, psychosocial perspective encompassing all aspects of disability, with a particular focus on the connection...
Rehabilitation psychology uniquely incorporates a holistic, psychosocial perspective encompassing all aspects of disability, with a particular focus on the connection between disabled people and the social environment. This article introduces a special issue of Rehabilitation Psychology on diversity and social justice in disability research. The 13 articles in this special issue coalesce around the 3 themes of (a) critical disability identity theory, (b) discrimination and prejudice, and (c) health disparities in the context of disability. This article introduces each of these articles and draws upon the work contained in this special issue to highlight important future directions for research on diversity and social justice in disability across the following areas: (a) nondisabled privilege, (b) rehabilitation versus cure versus adjustment, (c) diverse modes of knowing, and (d) a priori diversity and strength-based measures. This special issue helps rehabilitation psychologists consider how they can best fulfill their social justice, human rights, and advocacy missions in order to advance access and inclusion with and for diverse groups of disabled people. (PsycINFO Database Record (c) 2019 APA, all rights reserved).
Topics: Cultural Diversity; Disabled Persons; Health Status Disparities; Humans; Prejudice; Psychology; Social Justice
PubMed: 30985180
DOI: 10.1037/rep0000278 -
Brazilian Journal of Physical Therapy Jun 2016To empirically test the relationships proposed by the International Classification of Functioning, Disability and Health (ICF) among its domains.
OBJECTIVE:
To empirically test the relationships proposed by the International Classification of Functioning, Disability and Health (ICF) among its domains.
METHOD:
The cross-sectional study was completed with 226 adult patients with different health conditions who attended a Brazilian rehabilitation unit. The ICF components were measured with the following instruments: World Health Organization Disability Assessment Instrument II, Functional Independence Measure, Participation Scale, Craig Hospital Inventory of Environmental Factors, and a protocol designed to gather information on body structure and function and personal factors.
RESULTS:
Structural equation modeling showed good model adjustment, GFI=0.863; AGFI=0.795; RMSEA=0.028 (90% CI=0.014-0.043). Significant relationships were found between activity and both body structure and function (standard coefficient=0.32; p<0.0001) and participation components (standard coefficient=–0.70; p<0.0001). Environmental and personal factors had a significant effect on the three functioning components (standard coefficient =0.39; p<0.0001; standard coefficient =-0.35; p<0.001, respectively). In contrast, body structure and function had no significant effect on participation (standard coefficient=–0.10; p=0.111) and health conditions had no significant effect on any of the functioning components, i.e., body structure and function, activity, and participation (standard coefficient=–0.12; p=0.128).
CONCLUSION:
Some of the ICF’s proposed relationships across domains were confirmed, while others were not found to be significant. Our results reinforce the contextual dependency of the functioning and disability processes, in addition to putting into perspective the impact of health conditions.
Topics: Disability Evaluation; Disabled Persons; Humans; International Classification of Diseases; Models, Theoretical
PubMed: 27878225
DOI: 10.1590/bjpt-rbf.2014.0168 -
Seminars in Speech and Language Sep 2018Neurodiversity is both an empowerment movement and a way of thinking about disability. Rather than focusing on pathology and impairment, neurodiversity emphasizes... (Review)
Review
Neurodiversity is both an empowerment movement and a way of thinking about disability. Rather than focusing on pathology and impairment, neurodiversity emphasizes natural variation and the unique skills, experiences, and traits of neurodivergent individuals. People who stutter are beginning to work with and derive value from these concepts. In this article, we look at the history of neurodiversity and its key ideas. We discuss the conventional view of disability, the medical model, which situates disability within the individual as pathology. We also take up social and relation models of disability, which situate disability in social oppression or mismatches between individuals and their environment. Neurodiversity has not been without controversy. We look at some of the disagreements surrounding issues of intervention and cure. The ideas of neurodiversity are applied to stuttering, and a case example illustrating therapy using these ideas is given. We conclude that therapy should focus on subject's well-being and not normalization of superficial behaviors.
Topics: Disabled Persons; Female; Humans; Male; Patient Advocacy; Stuttering
PubMed: 30142648
DOI: 10.1055/s-0038-1667166 -
The American Psychologist Apr 2015The American Psychological Association (APA) advocates the use of person-first language (e.g., people with disabilities) to refer to individuals with disabilities in... (Review)
Review
The American Psychological Association (APA) advocates the use of person-first language (e.g., people with disabilities) to refer to individuals with disabilities in daily discourse and to reduce bias in psychological writing. Disability culture advocates and disability studies scholars have challenged the rationale for and implications of exclusive person-first language use, promoting use of identity-first language (e.g., disabled people). We argue that psychologists should adopt identity-first language alongside person-first constructions to address the concerns of disability groups while promoting human dignity and maintaining scientific and professional rigor. We review the evolution of disability language and then discuss the major models used to characterize disability and people with disabilities. The rationale for person-first language and the emergence of identity-first language, respectively, are linked to particular models. We then discuss some language challenges posed by identity-first language and the current intent of person-first language, suggesting that psychologists make judicious use of the former when it is possible to do so. We conclude by offering five observations of ways that use of both person-first and identity-first language could enhance psychologists' cultural competence regarding disability issues in personal and scientific communications.
Topics: Cultural Competency; Disabled Persons; Humans; Language; Psychology; Self Concept; Terminology as Topic
PubMed: 25642702
DOI: 10.1037/a0038636 -
Rehabilitation Psychology May 2019The purpose of this conceptual paper was to put forth a call for rehabilitation practitioners to consider their role in developing disability identity in their clients,... (Review)
Review
PURPOSE/OBJECTIVE
The purpose of this conceptual paper was to put forth a call for rehabilitation practitioners to consider their role in developing disability identity in their clients, and to understand this action as a form of allyship toward the disability community.
METHOD
This conceptual paper is organized to engage existing disability and disability-identity literature and its clinical implications. Practical tools and skills are offered for rehabilitation practitioners to develop disability identity and engage in disability allyship.
RESULTS
An overview of disability identity and its relationship to clinical practice is presented by way of a literature review. Conversation starters and two activities are presented for rehabilitation practitioners to develop and engage with clients about their disability identities. Descriptions of allyship actions for practitioners are presented.
DISCUSSION/CONCLUSION
In this conceptual paper, we framed disability in terms of both the medical and social models and argues that thinking about disability identity requires attention to the social model of disability. This attention is important, because it allows practitioners to think about themselves as allies to a particular community, rather than experts who must only "fix" clients' disabilities to elicit positive identity development. This shift toward allyship requires attention, engagement, and openness to see clients simultaneously as individuals and as members of a powerful, diverse community with a unique identity experience. (PsycINFO Database Record (c) 2019 APA, all rights reserved).
Topics: Disabled Persons; Humans; Psychology; Social Identification
PubMed: 30489124
DOI: 10.1037/rep0000256 -
Rehabilitation Psychology May 2019To inform the field of rehabilitation psychology about the sociocultural implications of the term "disability," and explain the rationale behind the #SaytheWord... (Review)
Review
PURPOSE
To inform the field of rehabilitation psychology about the sociocultural implications of the term "disability," and explain the rationale behind the #SaytheWord movement, a social media call to embrace disability identity.
METHOD
Review of the literature on disability terminology, the history of language use, and the relationship between attitudes toward disability and language. We reflect on the role of disability within the field of psychology and within the American Psychological Association (APA), including the underrepresentation of disabled psychologists and trainees with disabilities and the lack of mentorship opportunities available in the field.
IMPLICATIONS
The authors argue that erasure of the word "disability" can have unintended and adverse consequences. We describe how erasure of disability identity in the context of current sociopolitical efforts to reduce and eliminate public services and supports for people with disabilities is especially threatening to members of the disability community. To move forward, the authors postulate that the disability movement must reconcile its own history of exclusion and adopt a disability justice framework.
CONCLUSION
The field of psychology has a rich tradition of appreciation of cultural diversity and individual difference; yet, disability has largely been left out of these efforts. The disability movement is moving toward the status of a diverse cultural group with a social justice agenda parallel to those of other marginalized communities. The authors posit that psychology must play a stronger role in advancing the human rights of people with disabilities. (PsycINFO Database Record (c) 2019 APA, all rights reserved).
Topics: Attitude to Health; Culture; Disabled Persons; Humans; Language; Prejudice; Social Justice
PubMed: 30762412
DOI: 10.1037/rep0000258 -
International Journal of Environmental... Aug 2022This research aimed to map evidence about system supports and gaps for Australians with psychosocial disabilities and life-limiting diagnoses. A scoping review of... (Review)
Review
This research aimed to map evidence about system supports and gaps for Australians with psychosocial disabilities and life-limiting diagnoses. A scoping review of available policy documents, academic, and grey literature was completed to discover key characteristics of this concept and provide context around the phenomenon. Our focus was on Australia's National Disability Insurance Scheme (NDIS), a key reform providing support to the disability population nationally. No peer-reviewed or grey literature was retrieved on the phenomena. Therefore, three lines of enquiry were developed: experiences of NDIS participants living with psychosocial disabilities; the death, dying, and palliative care supports and experiences of NDIS participants of any disability type; and the experiences for people living with severe and persistent mental illness (SPMI) and life-limiting diagnoses. Five themes were identified: (1) the person; (2) advocacy; (3) informal supports; (4) formal supports; and (5) existing research. NDIS participants living with SPMI and their informal and formal support systems are still struggling to navigate the NDIS. While there are no specific publications about their end-of-life experiences, people with SPMI often experience poor end-of-life outcomes. Rigorous research into their death, dying, and palliative care experiences is needed to inform improved support to them, including their end-of-life care.
Topics: Australia; Chronic Disease; Disabled Persons; Humans; Insurance, Disability; Palliative Care; Terminal Care
PubMed: 36011776
DOI: 10.3390/ijerph191610144