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Radiologia 2023
Topics: Authorship; Disclosure; Peer Review
PubMed: 37758329
DOI: 10.1016/j.rxeng.2023.05.004 -
Danish Medical Journal Feb 2020
Topics: Authorship; Disclosure; Editorial Policies; Periodicals as Topic
PubMed: 32053482
DOI: No ID Found -
British Dental Journal Jan 2021
Topics: Disclosure; Informed Consent
PubMed: 33483636
DOI: 10.1038/s41415-021-2614-y -
Clinical Journal of the American... Jun 2019
Topics: Biomedical Research; Conflict of Interest; Disclosure; Humans
PubMed: 31092537
DOI: 10.2215/CJN.05280419 -
Indian Journal of Medical Ethics 2017Confidentiality underpins the trust between doctors and patients. As far back as the 2nd century BC, the great Indian physician, Charak, had stated: "Nothing that...
Confidentiality underpins the trust between doctors and patients. As far back as the 2nd century BC, the great Indian physician, Charak, had stated: "Nothing that happens in the house of the sick man must be told outside, nor must the patient's condition be told to anyone who might do harm by that knowledge to the patient or to another".
Topics: Confidentiality; Disclosure; Ethics, Medical; Humans; India; Mobile Applications; Physician-Patient Relations; Physicians; Privacy; Trust
PubMed: 28190792
DOI: 10.20529/IJME.2017.016 -
Canadian Family Physician Medecin de... Feb 2023
Topics: Humans; Grief; Truth Disclosure
PubMed: 36813506
DOI: 10.46747/cfp.690280 -
Blood Jun 2021In this issue of , Martin Merinero et al identified the mechanism of excessive complement activation caused by recurrent mutations in factor H–related protein-1...
In this issue of , Martin Merinero et al identified the mechanism of excessive complement activation caused by recurrent mutations in factor H–related protein-1 (FHR-1) in a few patients with atypical hemolytic uremic syndrome (aHUS). These are rare mutations in a rare disease, but the results provide a better understanding of complement regulation.
Topics: Truth Disclosure
PubMed: 34165547
DOI: 10.1182/blood.2021011364 -
AIDS Care Mar 2023Disclosure to children living with HIV (CLHIV) about their own status is associated with positive outcomes such as treatment adherence, but prior cross-sectional studies...
Disclosure to children living with HIV (CLHIV) about their own status is associated with positive outcomes such as treatment adherence, but prior cross-sectional studies in sub-Saharan Africa report disclosure rates of <50%. This study aims to assess pediatric disclosure over time. 548 CLHIV were followed from 2/2013-4/2018 in Johannesburg, South Africa. Cumulative incidence of disclosure was calculated with Kaplan-Meier analysis, and disclosure characteristics assessed with a Cox model. By end of follow-up, cumulative disclosure was 70.3% (95% confidence interval: 60.0-79.9). Median age at disclosure was 9 years (range: 3-13). Baseline predictors of disclosure included older child age and the child having a history of going hungry. Prior to disclosure, 98.0% of caregivers who disclosed had conversed with their child about their illness or an HIV-related topic, or their child had asked about HIV, versus 88.6% of caregivers who never disclosed. While many children did not receive disclosure during this relatively large, longitudinal study of South African CLHIV, caregivers who had not yet disclosed may have been preparing to do so by discussing their child's health or HIV generally with their child. This highlights the need for clinicians to consistently support caregivers throughout the incremental disclosure process.
Topics: Humans; Child; Adolescent; Child, Preschool; Disclosure; South Africa; Longitudinal Studies; HIV Infections; Cross-Sectional Studies; Truth Disclosure; Caregivers
PubMed: 34930060
DOI: 10.1080/09540121.2021.2017397 -
Journal of Applied Clinical Medical... May 2023
Topics: Humans; Disclosure; Conflict of Interest; Health Facilities; Delivery of Health Care
PubMed: 37089001
DOI: 10.1002/acm2.14002 -
Chronic Illness Sep 2023Illness disclosure refers to when individuals with chronic illnesses make decisions to tell others about their disease. There is a lack of research on the complexity of... (Review)
Review
OBJECTIVE
Illness disclosure refers to when individuals with chronic illnesses make decisions to tell others about their disease. There is a lack of research on the complexity of disclosure among children and youth with chronic illnesses. We conducted a review of the literature to understand the process of disclosure among children and youth with chronic illnesses in the context of peer-based relationships.
METHODS
A narrative review was completed using three databases. The search yielded 11 articles that utilized various research designs.
RESULTS
Most of the literature was qualitative in nature. Most children and youth engaged in non-disclosure and concealment which is born out of fears of discrimination. Fewer children and youth engaged in unplanned disclosure, passive disclosure, partial disclosure, and open disclosure. Children and youth carefully consider who they are disclosing to and perceptions about other peoples' responses strongly impact disclosure. Children and youth disclose verbally, behaviorally, and in written form. Disclosure is associated with both positive and negative effects, such as confidence, self-advocacy, and distress.
DISCUSSION
Health providers and researchers should critically support disclosure and empower children and youth with the resources they need to be agents in their own disclosure decisions.
Topics: Humans; Adolescent; Child; Disclosure; Communication; Chronic Disease; Truth Disclosure
PubMed: 35787158
DOI: 10.1177/17423953221110152