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CMAJ : Canadian Medical Association... Oct 2020
Topics: COVID-19; Decision Making, Shared; Health Care Rationing; Health Equity; Humans; Palliative Care; Pandemics; Patient Care Planning; Surge Capacity; Terminal Care; Withholding Treatment
PubMed: 33077529
DOI: 10.1503/cmaj.200465-f -
Annals of Palliative Medicine Sep 2023The compassionate communities (CC) movement is an emergent health promotion approach to palliative care that views illness, dying, death, and loss as universal...
BACKGROUND
The compassionate communities (CC) movement is an emergent health promotion approach to palliative care that views illness, dying, death, and loss as universal experiences, and challenges the notion that disease precludes one from health care attention and interest. It seeks to normalise these phenomena and reorientate care to communities by activating naturally occurring networks and mobilising community resources. A surge of interventions aligned with the ethos of CC has been observed over the last decade. This scoping review seeks to synthesise what is currently known about the design, efficacy, and impact of CC interventions.
METHODS
Cochrane, PubMed, Scopus, and Web of Science were systematically searched. Hand searching was performed on three key journals, reference lists and citation lists of included articles, and relevant review articles. Two levels of analysis were conducted. First, a numerical presentation of the characteristics of CC interventions. Second, a thematically orientated narrative analysis of intervention efficacy.
RESULTS
A total of 1,882 records were screened; 62 papers were included. Most were implemented by palliative care organisations in Europe, North America, and Australia. Included studies were mapped against Clark et al.'s taxonomy of end-of-life interventions: educational (n=17); service (n=20); clinical (n=3); cultural (n=4); and multi-dimensional (n=18) interventions are discussed. While preliminary findings are positive, claims of efficacy are limited due to methodological paucity in the field.
CONCLUSIONS
We argue that the field would benefit from more transparent and theoretically driven CC interventions in order to explicate the mechanism(s) for successful intervention implementation.
Topics: Humans; Palliative Care; Australia; Europe
PubMed: 37475658
DOI: 10.21037/apm-22-867 -
Annals of Palliative Medicine Jan 2018
Topics: Humans; Hypnosis; Pain Management; Palliative Care
PubMed: 29402093
DOI: 10.21037/apm.2018.01.02 -
Revista Brasileira de Enfermagem 2018to analyze the attributes, antecedents and consequents of the family conference concept. (Review)
Review
OBJECTIVE
to analyze the attributes, antecedents and consequents of the family conference concept.
METHOD
Walker and Avante's method for concept analysis and the stages of the integrative review process, with a selection of publications in the PubMed, Cinahl and Lilacs databases focusing on the family conference theme in the context of palliative care.
RESULTS
the most cited antecedents were the presence of doubts and the need to define a care plan. Family reunion and working instrument were evidenced as attributes. With respect to consequents, to promote the effective communication and to establish a plan of consensual action were the most remarkable elements.
FINAL CONSIDERATIONS
the scarcity of publications on the subject was observed, as well as and the limitation of the empirical studies to the space of intensive therapy. Thus, by analyzing the attributes, antecedents and consequents of the concept it was possible to follow their evolution and to show their efficacy and effectiveness as a therapeutic intervention.
Topics: Concept Formation; Consensus Development Conferences as Topic; Family; Humans; Palliative Care
PubMed: 29324964
DOI: 10.1590/0034-7167-2016-0055 -
Annals of Palliative Medicine Jan 2018At least 8 million children would need specialized pediatric palliative care (PPC) services annually worldwide, and of the more than 42,000 children and teenagers dying... (Review)
Review
At least 8 million children would need specialized pediatric palliative care (PPC) services annually worldwide, and of the more than 42,000 children and teenagers dying annually in the United States, at least 15,000 children would require PPC. Unfortunately, even in resource-rich countries the majority of children dying from serious advanced illnesses are suffering from unrelieved, distressing symptoms such as pain, dyspnea, nausea, vomiting, and anxiety. State of the art treatment and prevention of those symptoms requires employing multi-modal therapies, commonly including pharmacology, rehabilitation, procedural intervention, psychology, and integrative modalities. This article describes the current practice of integrating hypnosis into advanced pain and symptom management of children with serious illness. Three case reports of children living with a life-limiting condition exemplify the effective use of this clinical modality to decrease distressing symptoms and suffering. Hypnosis for pediatric patients experiencing a life-limiting disease not only provides an integral part of advanced symptom management, but also supports children dealing with loss and anticipatory loss, sustains and enhances hope and helps children and adolescents live fully, making every moment count, until death.
Topics: Adolescent; Child; Humans; Hypnosis; Integrative Medicine; Pain; Palliative Care; Stress, Psychological; Terminally Ill
PubMed: 28866891
DOI: 10.21037/apm.2017.05.02 -
Indian Journal of Medical Ethics 2017Pakistan is a developing country of South East Asia, with all the incumbent difficulties currently being faced by the region. Insufficient public healthcare facilities,...
Pakistan is a developing country of South East Asia, with all the incumbent difficulties currently being faced by the region. Insufficient public healthcare facilities, poorly regulated private health sector, low budgetary allocation for health, improper priority setting while allocating limited resources, have resulted essentially in an absence of palliative care from the healthcare scene. Almost 90% of healthcare expenditure is out of the patient's pocket with more than 45% of population living below the poverty line. All these factors have a collective potential to translate into an end-of-life care disaster as a large percentage of population is suffering from chronic debilitating/terminal diseases. So far, such a disaster has not materialised, the reason being a family based culture emphasising the care of the sick and old at home, supported by religious teachings. This culture is not limited to Pakistan but subsists in the entire sub-continent, where looking after the sick/elderly at home is considered to be the duty of the younger generation. With effects of globalisation, more and more older people are living alone and an increasing need for palliative care is being realised. However, there does not seem to be any plan on the part of the public or private sectors to initiate palliative care services. This paper seeks to trace the social and cultural perspectives in Pakistan with regards to accessing palliative care in the context of healthcare facilities available.
Topics: Adult; Aged; Aged, 80 and over; Attitude to Death; Delivery of Health Care; Developing Countries; Female; Health Services Accessibility; Humans; Male; Middle Aged; Pakistan; Palliative Care; Terminal Care
PubMed: 27867144
DOI: 10.20529/IJME.2017.007 -
Annals of Palliative Medicine Apr 2018Prof. Allan Kellehear first developed a contemporary public health approach to palliative and end-of-life care. Countries around the world have since adopted the theory... (Review)
Review
Prof. Allan Kellehear first developed a contemporary public health approach to palliative and end-of-life care. Countries around the world have since adopted the theory of practice that mobilizes palliative care as a public health issue-particularly the Compassionate Communities (CC) model. In the wake of Canada's Medical Assistance in Dying (MAiD) legislation and its growing senior population, quality palliative care has enjoyed a renewed focus. Pallium Canada is helping communities across the country understand and adopt the CC model, through education, knowledge mobilization, project facilitation, and leadership. Although it has made significant strides in the last few years, there is still progress to be made. The aim of this paper is to present the historical development of the public health approach to end-of-life care in Canada, including its successes and hardships thus far. Drawing from examples of regional, provincial, and national initiatives, future directions for community engagement as a public health approach to palliative care are discussed.
Topics: Canada; Community Health Services; Humans; Palliative Care; Social Support
PubMed: 29764178
DOI: 10.21037/apm.2018.03.16 -
BMJ Supportive & Palliative Care Mar 2016
Topics: Health Services Needs and Demand; Humans; Palliative Care; Terminal Care
PubMed: 26893386
DOI: 10.1136/bmjspcare-2015-001091 -
Current Opinion in Cardiology Mar 2018The current review discusses the integration of guideline and evidence-based palliative care into heart failure end-of-life (EOL) care. (Review)
Review
PURPOSE OF REVIEW
The current review discusses the integration of guideline and evidence-based palliative care into heart failure end-of-life (EOL) care.
RECENT FINDINGS
North American and European heart failure societies recommend the integration of palliative care into heart failure programs. Advance care planning, shared decision-making, routine measurement of symptoms and quality of life and specialist palliative care at heart failure EOL are identified as key components to an effective heart failure palliative care program. There is limited evidence to support the effectiveness of the individual elements. However, results from the palliative care in heart failure trial suggest an integrated heart failure palliative care program can significantly improve quality of life for heart failure patients at EOL.
SUMMARY
Integration of a palliative approach to heart failure EOL care helps to ensure patients receive the care that is congruent with their values, wishes and preferences. Specialist palliative care referrals are limited to those who are truly at heart failure EOL.
Topics: Decision Making; Disease Progression; Heart Failure; Humans; Palliative Care; Quality of Life; Terminal Care
PubMed: 29135524
DOI: 10.1097/HCO.0000000000000484 -
Ugeskrift For Laeger Oct 2017
Topics: Denmark; Health Priorities; Humans; Palliative Care
PubMed: 29053093
DOI: No ID Found