-
The New England Journal of Medicine Oct 2021
Topics: Attitude to Death; Death; Humans; Palliative Care; Terminal Care
PubMed: 34623785
DOI: 10.1056/NEJMp2107941 -
Journal of Advanced Nursing Sep 2022To appraise and synthesize the empirical literature on the needs and challenges of Indigenous peoples' accessibility to palliative care in rural and remote settings. (Review)
Review
AIMS
To appraise and synthesize the empirical literature on the needs and challenges of Indigenous peoples' accessibility to palliative care in rural and remote settings.
DESIGN
Whittemore and Knafl's updated approach to integrative reviews, PRISMA guidelines and CASP (2020) checklists for narrative analysis were followed.
DATA SOURCES
A systematic search of the published empirical literature from 1 January 2015 to 31 December 2021 was undertaken in five databases.
REVIEW METHODS
Twenty-four studies met the research question and the inclusion criteria.
RESULTS
Four themes describe the findings: Respect of Indigenous cultural beliefs on death and dying, connection to the land, needs for culturally responsive care and presence of institutional and systemic barriers. These themes indicate a pressing need to increase the accessibility and utilization of palliative care. Most of the studies were qualitative and conducted by teams of Indigenous and non-Indigenous researchers.
CONCLUSION
Integrating Indigenous knowledge and providing culturally responsive palliative care are steps towards achieving the decolonization of palliative care and responding to Indigenous people's needs of palliative care services. Institutional and systemic racism affect Indigenous peoples' access and delivery of palliative services in Canada and globally.
IMPACT
The review highlights the need for establishing partnerships and building local capacity with Indigenous communities to develop and implement culturally responsive palliative care programmes in remote locations.
Topics: Canada; Hospice and Palliative Care Nursing; Humans; Palliative Care; Rural Population
PubMed: 35578573
DOI: 10.1111/jan.15287 -
Palliative Medicine Jan 2022
Topics: Hospice and Palliative Care Nursing; Humans; Palliative Care; Palliative Medicine
PubMed: 34965752
DOI: 10.1177/02692163211069566 -
Current Oncology Reports Apr 2021Hospitals and healthcare organizations are today operating in an extremely competitive environment, with increasing pressure to improve quality while reducing costs. In... (Review)
Review
PURPOSE
Hospitals and healthcare organizations are today operating in an extremely competitive environment, with increasing pressure to improve quality while reducing costs. In responding to this dynamic situation, transformation of any organization requires the will to organize delivery around the needs of patients.
RECENT FINDINGS
Providing palliative care to the many who require it needs the value agenda to be formulated based on mutually reinforcing components. Here we present an overview of the framework for a palliative care department in a comprehensive cancer center, which includes different levels that are embedded within a comprehensive system. Detailed information on each level is presented, followed by a discussion of quality of care, as an integrating theme for the framework. The chapter concludes by detailing the benefits that a comprehensive cancer palliative care center provides to a country's healthcare efforts through service, education, research, and advocacy.
Topics: Health Resources; Hospice Care; Humans; Information Technology; Neoplasms; Palliative Care; Patient Care Planning; Practice Guidelines as Topic; Quality of Health Care
PubMed: 33852078
DOI: 10.1007/s11912-021-01061-7 -
Perspectives in Biology and Medicine 2020For the last 25 years, the Popes of the Roman Catholic Church have been vocal proponents of palliative care in an effort to promote human dignity, decrease human...
For the last 25 years, the Popes of the Roman Catholic Church have been vocal proponents of palliative care in an effort to promote human dignity, decrease human suffering, and discourage euthanasia and suicide. They have supported efforts to expand the scope and provision of palliative care. Recently, Pope Francis has focused on the need to provide perinatal palliative care. He has emphasized the need to do so as an act of mercy, love, and solidarity. His approach builds on the main pastoral theme of his Papacy, the mercy of God. This article outlines the thought of Pope Francis on the mercy of God and how he wishes to see this mercy motivate and invigorate not only the Church but all people. Perinatal palliative care becomes a further outgrowth of the love and mercy we show one another. It is a pastoral practice encouraged by the Church and consistent with Catholic doctrine and the mission of Catholic health-care facilities.
Topics: Catholicism; Congresses as Topic; Female; Humans; Love; Palliative Care; Perinatal Care; Perinatal Death; Pregnancy
PubMed: 33416626
DOI: 10.1353/pbm.2020.0040 -
Orvosi Hetilap Mar 2020Perinatal hospice care is a special form of paediatric palliative care, with a focus on prenatally diagnosed malformation, providing physical, psychological and mental...
Perinatal hospice care is a special form of paediatric palliative care, with a focus on prenatally diagnosed malformation, providing physical, psychological and mental support with a holistic approach for the families. Our aim was to analyse how perinatal hospice-palliative care can be implemented and what opportunities it may provide on the basis of available professional guidelines. We introduce study and analysis of the professional guidelines and protocols, mainly from Anglo-Saxon countries, and describe some examples of best practices. Perinatal hospice is a specially demanding care regarding professional and personal challenges. Standardised guidelines based on consensus can serve as starting points, describing proper care and its conditions. Moreover, they can facilitate communication and coordinative processes between the collaborating specialists. Challenging conditions and possible solutions to them can be identified during supportive formative courses. Continuous formation means competency development in palliative care as well as in adequate communication. Orv Hetil. 2020; 161(12): 452-457.
Topics: Child; Communication; Female; Hospice Care; Hospices; Humans; Infant, Newborn; Intensive Care Units, Neonatal; Palliative Care; Perinatal Care; Pregnancy
PubMed: 32172586
DOI: 10.1556/650.2020.31636 -
Journal of Hospice and Palliative... Apr 2020As the population of chronically ill, older adults increases, there is a growing need for palliative care. The Institute of Medicine recommends that health care...
As the population of chronically ill, older adults increases, there is a growing need for palliative care. The Institute of Medicine recommends that health care providers have a basic competency in palliative care. However, the definition of basic palliative care in practice and providers' understanding of basic palliative care lack clarity. The purpose of this study was to describe nurses' perceptions of basic palliative care in the acute care setting. This was accomplished by conducting focus group and individual interviews. The major themes of helping families navigate chronic illness and empowering families and subthemes of being present, giving options, and advocating emerged from the analysis. Through education and role modeling, nurses helped families navigate illness and end-of-life experiences. Study findings describe acute care nurses' perceptions of basic palliative care and may help to identify the educational needs of nurses in order to provide basic palliative care for patients and their families in acute care settings.
Topics: Adult; Attitude of Health Personnel; Female; Focus Groups; Humans; Male; Middle Aged; Nurses; Palliative Care; Professional-Family Relations; Qualitative Research
PubMed: 31977532
DOI: 10.1097/NJH.0000000000000622 -
BMJ Supportive & Palliative Care Oct 2023Should indication for transfusion in paediatric palliative care be based on the child's perspective rather than the biological results? An 8-year-old boy presenting a...
Should indication for transfusion in paediatric palliative care be based on the child's perspective rather than the biological results? An 8-year-old boy presenting a relapse of a stage IV neuroblastoma received regular blood transfusions. A severe exophtalmia led the doctors to question the transfusion strategy. Over 7.5 months, the child received 56 red blood cell units and 31 platelet units. He was hospitalised 50 times. Indication for blood test and transfusion may be regularly and collegially reassessed. Transfusion needs in a palliative strategy can be as high as in a curative strategy. Practices, benefits but also ethical and public health dimensions should be more studied.
Topics: Male; Child; Humans; Palliative Care; Blood Transfusion; Hospice and Palliative Care Nursing; Physicians
PubMed: 33468511
DOI: 10.1136/bmjspcare-2020-002582 -
Palliative & Supportive Care Jun 2024
Topics: Humans; Pulmonary Disease, Chronic Obstructive; Palliative Care; Health Services Accessibility; Male; Female; Aged
PubMed: 38264901
DOI: 10.1017/S1478951524000063 -
Journal of Holistic Nursing : Official... Sep 2020Leading highly functional health care teams in all practice settings is sustained through the identification of a conceptual framework to guide education and practice....
Leading highly functional health care teams in all practice settings is sustained through the identification of a conceptual framework to guide education and practice. This article presents an interdisciplinary framework for palliative and hospice education and practice. The framework builds on theoretical caring to convey elements of relational, holistic and compassion; articulates interprofessional tenets for guiding values; and aligns with constructs for palliative and hospice best practices. The framework invites those at the bedside and in leadership to be intentional in attending to education and the necessary activities that address the day-to-day operations of palliative and hospice care, as well as, honoring all interdisciplinary collaboration that supports quality outcomes and inspires actions that transform.
Topics: Hospices; Humans; Interprofessional Relations; Leadership; Palliative Care; Patient Care Team
PubMed: 31955648
DOI: 10.1177/0898010119899496