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AMA Journal of Ethics Apr 2020Many procedures performed today involve a team of specialists with their own training histories and backgrounds. Some errors are inevitable in the course of clinical...
Many procedures performed today involve a team of specialists with their own training histories and backgrounds. Some errors are inevitable in the course of clinical careers. Because errors tend to lead to complications, they often also lead to assignations of blame. When this happens, too often clinicians are at odds with each other about how to respond to a patient or a patient's loved ones after that patient suffers harm. This commentary on a case of a surgical complication examines how transparency in communication, cooperative disclosure, and working collaboratively to restore an injured patient's health support clinicians' common purpose, long-standing work relationships, and collegiality.
Topics: Communication; Disclosure; Humans
PubMed: 32345422
DOI: 10.1001/amajethics.2020.298 -
Radiologia 2023
Topics: Authorship; Disclosure; Peer Review
PubMed: 37758329
DOI: 10.1016/j.rxeng.2023.05.004 -
Danish Medical Journal Feb 2020
Topics: Authorship; Disclosure; Editorial Policies; Periodicals as Topic
PubMed: 32053482
DOI: No ID Found -
British Dental Journal Jan 2021
Topics: Disclosure; Informed Consent
PubMed: 33483636
DOI: 10.1038/s41415-021-2614-y -
Canadian Family Physician Medecin de... Feb 2023
Topics: Humans; Grief; Truth Disclosure
PubMed: 36813506
DOI: 10.46747/cfp.690280 -
Blood Jun 2021In this issue of , Martin Merinero et al identified the mechanism of excessive complement activation caused by recurrent mutations in factor H–related protein-1...
In this issue of , Martin Merinero et al identified the mechanism of excessive complement activation caused by recurrent mutations in factor H–related protein-1 (FHR-1) in a few patients with atypical hemolytic uremic syndrome (aHUS). These are rare mutations in a rare disease, but the results provide a better understanding of complement regulation.
Topics: Truth Disclosure
PubMed: 34165547
DOI: 10.1182/blood.2021011364 -
AIDS Research and Therapy Apr 2021The prevalence of disclosure of status to children living with the Human Immunodeficiency Virus (HIV) is low in most sub-Saharan African countries, leading to poor...
BACKGROUND
The prevalence of disclosure of status to children living with the Human Immunodeficiency Virus (HIV) is low in most sub-Saharan African countries, leading to poor compliance and adverse psychological outcomes in these children. This study examined the influence of disclosure on health outcomes in children living with HIV and their caregivers.
METHODS
Using a cross-sectional design, 155 HIV-positive children between age 6-15 years and their caregivers were administered standardized questionnaires measuring adherence to medication, children's psychological well-being, caregiver burden, and caregivers' psychological health.
RESULTS
Results indicated that only 33.5% of the children sampled knew their status. Disclosure of HIV status was significantly related to medication adherence, psychological wellbeing, the burden of caregiving, and the length of the disclosure. A child's age and level of education were the only demographic variables that significantly predicted disclosure of HIV status. In a hierarchical analysis, after controlling for all demographic variables medication adherence, psychological well-being and burden of caregiving were found to be significant predictors of disclosure of status in children living with HIV.
CONCLUSIONS
Findings suggest the need for disclosure of status among children living with HIV for a positive impact on their medication adherence and psychological health. These findings underscore the need for the development of context-specific interventions that will guide and encourage disclosure of status by caregivers to children living with HIV.
Topics: Adolescent; Caregivers; Child; Cross-Sectional Studies; Disclosure; HIV Infections; Humans; Medication Adherence; Surveys and Questionnaires; Truth Disclosure
PubMed: 33879193
DOI: 10.1186/s12981-021-00337-z -
Journal of Applied Clinical Medical... May 2023
Topics: Humans; Disclosure; Conflict of Interest; Health Facilities; Delivery of Health Care
PubMed: 37089001
DOI: 10.1002/acm2.14002 -
Chronic Illness Sep 2023Illness disclosure refers to when individuals with chronic illnesses make decisions to tell others about their disease. There is a lack of research on the complexity of... (Review)
Review
OBJECTIVE
Illness disclosure refers to when individuals with chronic illnesses make decisions to tell others about their disease. There is a lack of research on the complexity of disclosure among children and youth with chronic illnesses. We conducted a review of the literature to understand the process of disclosure among children and youth with chronic illnesses in the context of peer-based relationships.
METHODS
A narrative review was completed using three databases. The search yielded 11 articles that utilized various research designs.
RESULTS
Most of the literature was qualitative in nature. Most children and youth engaged in non-disclosure and concealment which is born out of fears of discrimination. Fewer children and youth engaged in unplanned disclosure, passive disclosure, partial disclosure, and open disclosure. Children and youth carefully consider who they are disclosing to and perceptions about other peoples' responses strongly impact disclosure. Children and youth disclose verbally, behaviorally, and in written form. Disclosure is associated with both positive and negative effects, such as confidence, self-advocacy, and distress.
DISCUSSION
Health providers and researchers should critically support disclosure and empower children and youth with the resources they need to be agents in their own disclosure decisions.
Topics: Humans; Adolescent; Child; Disclosure; Communication; Chronic Disease; Truth Disclosure
PubMed: 35787158
DOI: 10.1177/17423953221110152 -
Academic Psychiatry : the Journal of... Oct 2021
Topics: Disclosure; HIV Infections; Humans; Public Health; Self Disclosure
PubMed: 33973166
DOI: 10.1007/s40596-021-01476-1