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Health Services Research Aug 2022To examine the qualitative literature on low-income women's perspectives on the barriers to high-quality prenatal and postpartum care.
OBJECTIVE
To examine the qualitative literature on low-income women's perspectives on the barriers to high-quality prenatal and postpartum care.
DATA SOURCES AND STUDY SETTING
We performed searches in PubMed, Web of Science, Embase, SocIndex, and CINAHL for peer-reviewed studies published between 1990 and 2021.
STUDY DESIGN
A systematic review of qualitative studies with participants who were currently pregnant or had delivered within the past 2 years and identified as low-income at delivery.
DATA COLLECTION/EXTRACTION METHODS
Two reviewers independently assessed studies for inclusion, evaluated study quality, and extracted information on study design and themes.
PRINCIPAL FINDINGS
We identified 34 studies that met inclusion criteria, including 23 focused on prenatal care, 6 on postpartum care, and 5 on both. The most frequently mentioned barriers to prenatal and postpartum care were structural. These included delays in gaining pregnancy-related Medicaid coverage, challenges finding providers who would accept Medicaid, lack of provider continuity, transportation and childcare hurdles, and legal system concerns. Individual-level factors, such as lack of awareness of pregnancy, denial of pregnancy, limited support, conflicting priorities, and indifference to pregnancy, also interfered with the timely use of prenatal and postpartum care. For those who accessed care, experiences of dismissal, discrimination, and disrespect related to race, insurance status, age, substance use, and language were common.
CONCLUSIONS
Over a period of 30 years, qualitative studies have identified consistent structural and individual barriers to high-quality prenatal and postpartum care. Medicaid policy changes, including expanding presumptive eligibility, increased reimbursement rates for pregnancy services, payment for birth doula support, and extension of postpartum coverage, may help overcome these challenges.
Topics: Female; Humans; Insurance Coverage; Medicaid; Postnatal Care; Pregnancy; Prenatal Care; Qualitative Research
PubMed: 35584267
DOI: 10.1111/1475-6773.14008 -
BMC Geriatrics May 2016There has been a substantial number of systematic reviews of stress, coping and interventions for people with dementia and their caregivers. This paper provides a... (Meta-Analysis)
Meta-Analysis Review
BACKGROUND
There has been a substantial number of systematic reviews of stress, coping and interventions for people with dementia and their caregivers. This paper provides a meta-review of this literature 1988-2014.
METHOD
A meta-review was carried out of systematic reviews of stress, coping and interventions for people with dementia and their caregivers, using SCOPUS, Google Scholar and CINAHL Plus databases and manual searches.
RESULTS
The meta-review identified 45 systematic reviews, of which 15 were meta-analyses. Thirty one reviews addressed the effects of interventions and 14 addressed the results of correlational studies of factors associated with stress and coping. Of the 31 systematic reviews dealing with intervention studies, 22 focused on caregivers, 6 focused on people with dementia and 3 addressed both groups. Overall, benefits in terms of psychological measures of mental health and depression were generally found for the use of problem focused coping strategies and acceptance and social-emotional support coping strategies. Poor outcomes were associated with wishful thinking, denial, and avoidance coping strategies. The interventions addressed in the systematic reviews were extremely varied and encompassed Psychosocial, Psychoeducational, Technical, Therapy, Support Groups and Multicomponent interventions. Specific outcome measures used in the primary sources covered by the systematic reviews were also extremely varied but could be grouped into three dimensions, viz., a broad dimension of "Psychological Well-Being v. Psychological Morbidity" and two narrower dimensions of "Knowledge and Coping" and of "Institutionalisation Delay".
CONCLUSIONS
This meta-review supports the conclusion that being a caregiver for people with dementia is associated with psychological stress and physical ill-health. Benefits in terms of mental health and depression were generally found for caregiver coping strategies involving problem focus, acceptance and social-emotional support. Negative outcomes for caregivers were associated with wishful thinking, denial and avoidance coping strategies. Psychosocial and Psychoeducational interventions were beneficial for caregivers and for people with dementia. Support groups, Multicomponent interventions and Joint Engagements by both caregivers and people with dementia were generally found to be beneficial. It was notable that virtually all reviews addressed very general coping strategies for stress broadly considered, rather than in terms of specific remedies for specific sources of stress. Investigation of specific stressors and remedies would seem to be a useful area for future research.
Topics: Adaptation, Psychological; Caregivers; Dementia; Depression; Emotions; Humans; Mental Health; Social Support; Stress, Psychological
PubMed: 27193287
DOI: 10.1186/s12877-016-0280-8 -
BMJ (Clinical Research Ed.) Nov 2002To summarise the evidence on the effect of psychological coping styles (including fighting spirit, helplessness/hopelessness, denial, and avoidance) on survival and... (Meta-Analysis)
Meta-Analysis Review
OBJECTIVE
To summarise the evidence on the effect of psychological coping styles (including fighting spirit, helplessness/hopelessness, denial, and avoidance) on survival and recurrence in patients with cancer.
DESIGN
Systematic review of published and unpublished prospective observational studies.
MAIN OUTCOMES MEASURES
Survival from or recurrence of cancer.
RESULTS
26 studies investigated the association between psychological coping styles and survival from cancer, and 11 studies investigated recurrence. Most of the studies that investigated fighting spirit (10 studies) or helplessness/hopelessness (12 studies) found no significant associations with survival or recurrence. The evidence that other coping styles play an important part was also weak. Positive findings tended to be confined to small or methodologically flawed studies; lack of adjustment for potential confounding variables was common. Positive conclusions seemed to be more commonly reported by smaller studies, indicating potential publication bias.
CONCLUSION
There is little consistent evidence that psychological coping styles play an important part in survival from or recurrence of cancer. People with cancer should not feel pressured into adopting particular coping styles to improve survival or reduce the risk of recurrence.
Topics: Adaptation, Psychological; Anxiety; Avoidance Learning; Cohort Studies; Denial, Psychological; Depression; Emotions; Humans; Neoplasm Recurrence, Local; Neoplasms; Prognosis; Prospective Studies; Publication Bias; Survivors
PubMed: 12424165
DOI: 10.1136/bmj.325.7372.1066 -
BMJ Open Jun 2024Synthesis of the experience of women with pain from pelvic or vaginal mesh or its removal, to identify pain-related problems and to formulate psychological aspects of...
OBJECTIVES
Synthesis of the experience of women with pain from pelvic or vaginal mesh or its removal, to identify pain-related problems and to formulate psychological aspects of pain.
DESIGN
Systematic review and thematic analysis of qualitative studies of pain from pelvic or vaginal mesh, or mesh removal, in women over 18 years, using individual interviews, focus groups, free text, or written or oral contributions to formal enquiries.
DATA SOURCES
Medline, Embase and PsycINFO, from inception to 26 April 2023.
ELIGIBILITY CRITERIA
Qualitative studies of pain and other symptoms from pelvic or vaginal mesh or its removal; adults; no language restriction.
DATA EXTRACTION AND SYNTHESIS
Line-by-line coding of participant quotations and study author statements by one author to provide codes that were applied to half the studies by another author and differences resolved by discussion. Codes were grouped into subthemes and themes by both authors, then scrutinised and discussed by a focus group of mesh-injured women for omissions, emphasis and coherence. Studies were appraised using an amalgamation of the CASP and COREQ tools.
RESULTS
2292 search results produced 9 eligible studies, with 7-752 participants, a total of around 2000. Four recruited patients, four totally or partially from mesh advocacy groups, and two were national enquiries (UK and Australia). Four major themes were as follows: broken body, broken mind; distrust of doctors and the medical industry; broken life and keeping going-a changed future. Psychological content mainly concerned the loss of trust in medical care, leaving women unsupported in facing an uncertain future. Mesh-injured women strongly endorsed the findings.
CONCLUSIONS
Pain and other problems associated with pelvic mesh are profound and far-reaching for women affected. Worse, they feel subject to continued gaslighting, including denial of their mesh-related problems and dismissal of their concerns about continued mesh insertion.
PROSPERO REGISTRATION NUMBER
CRD42022330527.
Topics: Humans; Female; Surgical Mesh; Qualitative Research; Pelvic Organ Prolapse; Pelvic Pain
PubMed: 38830733
DOI: 10.1136/bmjopen-2024-085879 -
Sensors (Basel, Switzerland) May 2023Software-defined networking (SDN) is a revolutionary innovation in network technology with many desirable features, including flexibility and manageability. Despite... (Review)
Review
Software-defined networking (SDN) is a revolutionary innovation in network technology with many desirable features, including flexibility and manageability. Despite those advantages, SDN is vulnerable to distributed denial of service (DDoS), which constitutes a significant threat due to its impact on the SDN network. Despite many security approaches to detect DDoS attacks, it remains an open research challenge. Therefore, this study presents a systematic literature review (SLR) to systematically investigate and critically analyze the existing DDoS attack approaches based on machine learning (ML), deep learning (DL), or hybrid approaches published between 2014 and 2022. We followed a predefined SLR protocol in two stages on eight online databases to comprehensively cover relevant studies. The two stages involve automatic and manual searching, resulting in 70 studies being identified as definitive primary studies. The trend indicates that the number of studies on SDN DDoS attacks has increased dramatically in the last few years. The analysis showed that the existing detection approaches primarily utilize ensemble, hybrid, and single ML-DL. Private synthetic datasets, followed by unrealistic datasets, are the most frequently used to evaluate those approaches. In addition, the review argues that the limited literature studies demand additional focus on resolving the remaining challenges and open issues stated in this SLR.
PubMed: 37177643
DOI: 10.3390/s23094441 -
The Medical Clinics of North America Sep 2003Communication is an important component of patient care. Traditionally, communication in medical school curricula was incorporated informally as part of rounds and... (Review)
Review
Communication is an important component of patient care. Traditionally, communication in medical school curricula was incorporated informally as part of rounds and faculty feedback, but without a specific or intense focus on skills of communicating per se. The reliability and consistency of this teaching method left gaps, which are currently getting increased attention from medical schools and accreditation organizations. There is also increased interest in researching patient-doctor communication and recognizing the need to teach and measure this specific clinical skill. In 1999, the Accreditation of Council for Graduate Medical Education implemented a requirement for accreditation for residency programs that focuses on "interpersonal and communications skills that result in effective information exchange and teaming with patients, their families, and other health professionals." The National Board of Medical Examiners, Federation of State Medical Boards. and the Educational Commission for Foreign Medical Graduates have proposed an examination between the. third and fourth year of medical school that "requires students to demonstrate they can gather information from patients, perform a physical examination, and communicate their findings to patients and colleagues" using standardized patients. One's efficiency and effectiveness in communication can be improved through training, but it is unlikely that any future advances will negate the need and value of compassionate and empathetic two-way communication between clinician and patient. The published literature also expresses belief in the essential role of communication. "It has long been recognized that difficulties in the effective delivery of health care can arise from problems in communication between patient and provider rather than from any failing in the technical aspects of medical care. Improvements in provider-patient communication can have beneficial effects on health outcomes". A systematic review of randomized clinical trials and analytic studies of physician-patient communication confirmed a positive influence of quality communication on health outcomes. Continuing research in this arena is important. For a successful and humanistic encounter at an office visit, one needs to be sure that the patient's key concerns have been directly and specifically solicited and addressed. To be effective, the clinician must gain an understanding of the patient's perspective on his or her illness. Patient concerns can be wide ranging, including fear of death, mutilation, disability; ominous attribution to pain symptoms; distrust of the medical profession; concern about loss of wholeness, role, status, or independence; denial of reality of medical problems; grief; fear of leaving home; and other uniquely personal issues. Patient values, cultures, and preferences need to be explored. Gender is another element that needs to be taken into consideration. Ensuring key issues are verbalized openly is fundamental to effective patient-doctor communication. The clinician should be careful not to be judgmental or scolding because this may rapidly close down communication. Sometimes the patient gains therapeutic benefit just from venting concerns in a safe environment with a caring clinician. Appropriate reassurance or pragmatic suggestions to help with problem solving and setting up a structured plan of action may be an important part of the patient care that is required. Counseling around unhealthy or risky behaviors is an important communication skill that should be part of health care visits. Understanding the psychology of behavioral change and establishing a systematic framework for such interventions, which includes the five As of patient counseling (assess, advise, agree, assist, and arrange) are steps toward ensuring effective patient-doctor communication. Historically in medicine, there was a paternalistic approach to deciding what should be done for a patient: the physician knew best and the patient accepted the recommendation without question. This era is ending, being replaced with consumerism and the movement toward shared decision-making. Patients are advising each other to "educate yourself and ask questions". Patient satisfaction with their care, rests heavily on how successfully this transition is accomplished. Ready access to quality information and thoughtful patient-doctor discussions is at the fulcrum of this revolution.
Topics: Clinical Competence; Communication; Education, Medical, Graduate; Educational Measurement; Female; Humans; Internship and Residency; Office Visits; Outcome Assessment, Health Care; Patient Education as Topic; Patient Satisfaction; Physician-Patient Relations; Quality Assurance, Health Care; United States
PubMed: 14621334
DOI: 10.1016/s0025-7125(03)00066-x -
Journal of Community Health Nursing 2022The visible physical dysfunction and invisible psychological effects after stroke prevent young patients from returning to their pre-stroke roles and social activities.
BACKGROUND
The visible physical dysfunction and invisible psychological effects after stroke prevent young patients from returning to their pre-stroke roles and social activities.
PURPOSE/AIM
To comprehensively analyze the psychological experience and social reintegration needs of young stroke patients, which may be beneficial for improving quality of life and social reintegration after stroke.
METHODS
We conducted a comprehensive literature search of 10 databases. The screening and quality assessment of the included articles were performed by the Qualitative Assessment and Review Instrument (QARI). Meta-aggregation was conducted to synthesize the findings of the included studies. We summarized the certainty of confidence using the Confidence in Evidence from Reviews of Qualitative Research (CERQual) approach.
RESULTS
A total of 5506 studies were screened, of which 12 were included. Data synthesis suggested two new themes: (a) the self-growth process from denial of stroke to accepting stroke (high CERQual confidence), and (b) desire to regain pre-stroke normality, but having difficulty in the social reintegration process (high CERQual confidence).
CONCLUSION
Stroke, as a traumatic event, disrupts the life structure of young patients, and their needs of reintegration are not adequately considered. Interventions based on the principle of individuation should focus on this issue to restore continuity in life after stroke.
Topics: Humans; Qualitative Research; Quality of Life; Stroke
PubMed: 35653793
DOI: 10.1080/07370016.2022.2077074 -
Ethnicity & Health Jul 2020Domestic violence and abuse has been recognised as an international public health problem. However, the pervasiveness of the problem is unknown due in part to...
Domestic violence and abuse has been recognised as an international public health problem. However, the pervasiveness of the problem is unknown due in part to underreporting, especially among women from ethnic minority populations. In relation to this group, this review seeks to explore: (1) the barriers to disclosure; (2) the facilitators of help-seeking; and (3) self-perceived impacts of domestic violence. We systematically identified published qualitative studies conducted among women from ethnic minority populations in the UK. Data analysis was completed using thematic analysis approach. 562 papers were identified and eight papers from four studies conducted among women from ethnic minority populations in the UK met the inclusion criteria and were reviewed. Barriers to disclosure include: Immigration status, community influences, problems with language and interpretation, and unsupportive attitudes of staff within mainstream services. Facilitators of help-seeking were: escalation of abuse and safety of children. Self-perceived impact of abuse includes: shame, denial, loss of identity and lack of choice. There is an on-going need for staff from domestic violence services to be aware of the complexities within which women from ethnic minority populations experience domestic violence and abuse.
Topics: Black People; Disclosure; Domestic Violence; Emigrants and Immigrants; Ethnicity; Female; Humans; Minority Groups; Patient Acceptance of Health Care; Qualitative Research; Social Environment; United Kingdom
PubMed: 29514473
DOI: 10.1080/13557858.2018.1447652 -
Current Opinion in Supportive and... Mar 2019This review aims to describe the recent literature on communication between cancer care clinicians and angry patients and patients in denial.
PURPOSE OF REVIEW
This review aims to describe the recent literature on communication between cancer care clinicians and angry patients and patients in denial.
RECENT FINDINGS
Clinicians had improved perceived self-efficacy in responding to patient anger after completing anger management training, with a focus on reframing anger as a normative response to unmet needs. Psychosocial and mindfulness programmes for cancer patients were found to be useful for modifying anger response to stressors. Existing clinician communication guidelines may not meet the complex needs of adolescents and individuals with anger-prone personality expressing anger. The detrimental effects of avoiding communication about cancer and dying in patients and families include increased stress and emotional burden, patient depression and anxiety and regret in bereaved family members. Further understanding of the complex interplay between the expression of instrumental and emotional concerns of patients may lead to improved clinician communication.
SUMMARY
Anger and maladaptive denial in patients with cancer have detrimental effects that can be seen across a wide range of cultural contexts, in not only the patient but also in their families and the involved clinicians. Training interventions for both patients and clinicians can benefit patient emotional response and perceived clinician self-efficacy.
Topics: Anger; Anxiety; Communication; Denial, Psychological; Depression; Emotions; Family; Female; Health Personnel; Humans; Male; Mindfulness; Neoplasms; Self Efficacy; Severity of Illness Index; Stress, Psychological
PubMed: 30632988
DOI: 10.1097/SPC.0000000000000410 -
International Journal of Health Policy... Sep 2021This commentary considers the impact of the coronavirus disease 2019 (COVID-19) pandemic on the study of populist radical right (PRR) politicians and their influence on...
Denial and Distraction: How the Populist Radical Right Responds to COVID-19 Comment on "A Scoping Review of PRR Parties' Influence on Welfare Policy and its Implication for Population Health in Europe".
This commentary considers the impact of the coronavirus disease 2019 (COVID-19) pandemic on the study of populist radical right (PRR) politicians and their influence on public health and health policy. A systematic review of recent research on the influence of PRR politicians on the health and welfare policies shows that health is not a policy arena that these politicians have much experience in. In office, their effects can be destructive, primarily because they subordinate health to their other goals. Brazil, the US and the UK all show this pattern. PRR politicians in opposition such as the Freedom Party of Austria (FPÖ) in Austria or the Lega in Italy, said very little during the actual health crisis, but once the public no longer appeared afraid they lost no time in reactivating anti-European Union (EU) sentiments. Whether in government or in opposition, PRR politicians opted for distraction and denial. Their effects ranged from making the pandemic worse.
Topics: COVID-19; Europe; Health Policy; Humans; Politics; Population Health; SARS-CoV-2
PubMed: 32772011
DOI: 10.34172/ijhpm.2020.141