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British Journal of Anaesthesia Jan 2019
Topics: Anesthesia; Anesthesiology; Hip Fractures; Humans; Outcome Assessment, Health Care
PubMed: 30579392
DOI: 10.1016/j.bja.2018.11.009 -
Value in Health : the Journal of the... Nov 2020
Topics: Betacoronavirus; COVID-19; Coronavirus; Coronavirus Infections; Cost-Benefit Analysis; Humans; Outcome Assessment, Health Care; Pandemics; Pneumonia, Viral; SARS-CoV-2; United Kingdom
PubMed: 33127008
DOI: 10.1016/j.jval.2020.09.009 -
Value in Health : the Journal of the... May 2023
Topics: Humans; Economics, Medical; Outcome Assessment, Health Care; Economics
PubMed: 36914093
DOI: 10.1016/j.jval.2023.03.002 -
Current Opinion in Rheumatology Mar 2017Incorporation of the patients' perspective in clinical research is critical to ensure that outcomes measured reflect those, which matter most to patients. This review... (Review)
Review
PURPOSE OF REVIEW
Incorporation of the patients' perspective in clinical research is critical to ensure that outcomes measured reflect those, which matter most to patients. This review summarizes recent efforts to include the patients' perspective in the development of outcome measures and the importance of encouraging patient participation in decision-making and self-management.
RECENT FINDINGS
Since the inclusion of fatigue as a patient-endorsed core outcome measure in rheumatoid arthritis (RA) trials, OMERACT has been instrumental in advocating for patient involvement in the development of core domains and instruments; current endeavors include cultivating an understanding of remission through the eyes of patients and gaining a sense of how to measure features of pain and 'stiffness' deemed as important to patients. The concept of remission was further explored in RA patients, highlighting a common goal of returning to normality; additionally, various tools have been developed to assess for unmet needs in rheumatology patients. Advances have also been made in the development and revision of patient-centered core measures in rheumatologic diagnoses outside of RA.
SUMMARY
Incorporating the patients' perspective is now considered an essential feature in outcomes research. Future research should focus on how best to involve patients in specific research activities.
Topics: Arthritis, Rheumatoid; Decision Making; Fatigue; Humans; Outcome Assessment, Health Care; Pain; Patient Participation; Patient Reported Outcome Measures; Rheumatic Diseases; Rheumatology; Self Care
PubMed: 28072590
DOI: 10.1097/BOR.0000000000000372 -
Rheumatic Diseases Clinics of North... Nov 2013This article provides an introduction to key aspects of outcomes research in pediatric rheumatology, focusing on arthritis. Patient-centered outcomes research addresses... (Review)
Review
This article provides an introduction to key aspects of outcomes research in pediatric rheumatology, focusing on arthritis. Patient-centered outcomes research addresses questions of interest to multiple stakeholders in order to guide the best health care decisions suited to a particular patient's circumstances and preferences. Discussion includes the importance of maintaining high-quality longitudinal patient registries and use of valid clinical and patient-reported outcome measures. Rapid, reliable translation of research on best practices into clinical care, as facilitated by quality improvement learning networks, leads to timely and meaningful improvement in patient outcomes.
Topics: Arthritis, Juvenile; Autoimmune Diseases; Child; Humans; Outcome Assessment, Health Care; Patient Outcome Assessment; Pediatrics; Registries; Rheumatology
PubMed: 24182861
DOI: 10.1016/j.rdc.2013.07.004 -
American Journal of Surgery Jul 2022
Topics: Biomedical Research; Humans; Outcome Assessment, Health Care; Surgeons
PubMed: 35317922
DOI: 10.1016/j.amjsurg.2022.03.013 -
Brain : a Journal of Neurology Dec 2023The capacity and power of data from cohorts, registries and randomized trials to provide answers to contemporary clinical questions in neurology has increased... (Review)
Review
The capacity and power of data from cohorts, registries and randomized trials to provide answers to contemporary clinical questions in neurology has increased considerably over the past two decades. Novel sophisticated statistical methods are enabling us to harness these data to guide treatment decisions, but their complexity is making appraisal of clinical evidence increasingly demanding. In this review, we discuss several methodological aspects of contemporary research of treatment effectiveness in observational data in neurology, aimed at academic neurologists and analysts specializing in outcomes research. The review discusses specifics of the sources of observational data and their key features. It focuses on the limitations of observational data and study design, as well as statistical approaches aimed to overcome these limitations. Among the examples of leading clinical themes typically studied with analyses of observational data, the review discusses methodological approaches to comparative treatment effectiveness, development of diagnostic criteria and definitions of clinical outcomes. Finally, this review provides a brief summary of key points that will help clinical audience critically evaluate design and analytical aspects of studies of disease outcomes using observational data.
Topics: Humans; Treatment Outcome; Outcome Assessment, Health Care; Registries; Research Design; Neurology
PubMed: 37587541
DOI: 10.1093/brain/awad278 -
Value in Health Regional Issues Dec 2019An increasing awareness of the importance of health economics and outcomes research (HEOR) skills has been reported in Latin America. There is, however, no published...
BACKGROUND
An increasing awareness of the importance of health economics and outcomes research (HEOR) skills has been reported in Latin America. There is, however, no published study directly assessing perceived knowledge levels and knowledge gaps on specific HEOR topics among professionals and students in the region.
OBJECTIVES
To assess perceived HEOR knowledge levels and identify knowledge gaps in Latin America.
METHODS
An online needs assessment survey was developed to quantify perceived HEOR knowledge levels and identify knowledge gaps. Members of the International Society for Pharmacoeconomics and Outcomes Research in the Latin American region, regional chapters, and student chapter presidents were invited to participate in the survey. The survey, developed using the SurveyMonkey tool, was distributed to participants electronically. Data were extracted from the survey and analyzed using Microsoft Excel. Data analysis was conducted using descriptive statistics to summarize the survey respondents' demographic information, current and desired knowledge levels, and preferred method/format for delivery of educational training.
RESULTS
Survey responses were collected from 106 participants. The largest knowledge gap was calculated for methods for integrating medication adherence and persistence in health economic evaluations (mean = 2.30 ± 1.48). The smallest knowledge gap was calculated for types of healthcare costs (mean = 1.01 ± 1.17). Most respondents (74% [n = 66]) preferred to receive educational materials related to HEOR topics through online learning and continuing education programs.
CONCLUSIONS
The knowledge gap assessment provided current knowledge gap perceptions among members of the International Society for Pharmacoeconomics and Outcomes Research in Latin America. The survey data collected support a need for developing educational programs for topics with the highest perceived knowledge gap.
Topics: Adult; Aged; Cross-Sectional Studies; Economics, Medical; Female; Health Knowledge, Attitudes, Practice; Humans; Latin America; Male; Middle Aged; Needs Assessment; Outcome Assessment, Health Care; Surveys and Questionnaires
PubMed: 30634087
DOI: 10.1016/j.vhri.2018.10.006 -
International Journal of Surgery... Mar 2021Success in global surgery interventions cannot be claimed until consistent long-term follow up is achieved and corresponding outcomes are studied. However,...
Success in global surgery interventions cannot be claimed until consistent long-term follow up is achieved and corresponding outcomes are studied. However, post-operative outcomes remain inconsistently collected and analyzed in the setting of global surgery, with current efforts largely focused on the delivery of surgical care. Barriers in low- and middle-income countries include patient cost and distance, low surgical workforce capacity, poor patient health literacy, lack of affordable technology availability, inconsistent documentation, and structural deficiencies. Here, we suggest that future work can be focused on (1) enhancing systems to facilitate long-term follow up and care, (2) expanding availability and adoption of electronic medical record systems, and (3) collaboration with local surgeons in the development of international cross-organizational registries and standardized quality measures. Long-term collaborations between local healthcare administrators and providers, policymakers, international bodies, nonprofit organizations, patients, and the private sector are necessary to build and sustain processes to achieve reliable long-term follow up and rigorous data collection, with the goal of ultimately ensuring better patient outcomes.
Topics: Data Collection; Follow-Up Studies; Humans; Intersectoral Collaboration; Outcome Assessment, Health Care; Surgical Procedures, Operative
PubMed: 33513453
DOI: 10.1016/j.ijsu.2021.01.011 -
Academic Emergency Medicine : Official... Dec 2018The evidence supporting best practices when treating children in the prehospital setting or even the effect emergency medical services (EMS) has on patient outcomes is...
The evidence supporting best practices when treating children in the prehospital setting or even the effect emergency medical services (EMS) has on patient outcomes is limited. Standardizing the critical outcomes for EMS research will allow for focused and comparable effort among the small but growing group of pediatric EMS investigators on specific topics. Standardized outcomes will also provide the opportunity to collectively advance the science of EMS for children and demonstrate the effect of EMS on patient outcomes. This article describes a consensus process among stakeholders in the pediatric emergency medicine and EMS community that identified the critical outcomes for EMS care in five clinical areas (traumatic brain injury, general injury, respiratory disease/failure, sepsis, and seizures). These areas were selected based on both their known public health importance and their commonality in EMS encounters. Key research outcomes identified by participating stakeholders using a modified nominal group technique for consensus building, which included small group brainstorming and independent voting for ranking outcomes that were feasible and/or important for the field.
Topics: Child; Health Services Research; Humans; Outcome Assessment, Health Care; Pediatric Emergency Medicine
PubMed: 30312993
DOI: 10.1111/acem.13637