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Quality of Life Research : An... Feb 2018Previous work in pediatric oncology has found that clinicians and parents tend to under-report the frequency and severity of treatment-related symptoms compared to child... (Review)
Review
OBJECTIVE
Previous work in pediatric oncology has found that clinicians and parents tend to under-report the frequency and severity of treatment-related symptoms compared to child self-report. As such, there is a need to identify high-quality self-report instruments to be used in pediatric oncology research studies. This study's objective was to conduct a systematic literature review of existing English language instruments used to measure self-reported symptoms in children and adolescents undergoing cancer treatment.
METHODS
A comprehensive literature search was conducted in MEDLINE/PubMed, EMBASE, CINAHL, and PsycINFO to identify relevant articles published through November 10, 2016. Using pre-specified inclusion/exclusion criteria, six trained reviewers carefully screened abstracts and full-text articles for eligibility.
RESULTS
There were 7738 non-duplicate articles identified in the literature search. Forty articles met our eligibility criteria, and within these articles, there were 38 self-report English symptom instruments. Most studies evaluated only cross-sectional psychometric properties, such as reliability or validity. Ten studies assessed an instrument's responsiveness or ability to detect changes in symptoms over time. Eight instruments met our criteria for use in future longitudinal pediatric oncology studies.
CONCLUSIONS
This systematic review aids pediatric oncology researchers in identifying and selecting appropriate symptom measures with strong psychometric evidence for their studies. Enhancing the child's voice in pediatric oncology research studies allows us to better understand the impact of cancer and its treatment on the lives of children.
Topics: Adolescent; Adult; Biomedical Research; Child; Cross-Sectional Studies; Humans; Medical Oncology; Psychometrics; Quality of Life; Reproducibility of Results; Self Report; Young Adult
PubMed: 28879501
DOI: 10.1007/s11136-017-1692-4 -
Sleep Medicine Reviews Oct 2022Everyday experience suggests that sleep and affect are closely linked, with daytime affect influencing how we sleep, and sleep influencing subsequent affect. Yet... (Review)
Review
Everyday experience suggests that sleep and affect are closely linked, with daytime affect influencing how we sleep, and sleep influencing subsequent affect. Yet empirical evidence for this bidirectional relationship between sleep and affect in non-clinical adult samples remains mixed, which may be due to heterogeneity in both construct definitions and measurement. This conceptual review proposes a granular framework that deconstructs sleep and affect findings according to three subordinate dimensions, namely domains (which are distinct for sleep and affect), methods (i.e., self-report vs. behavioral/physiological measures), and timescale (i.e., shorter vs. longer). We illustrate the value of our granular framework through a systematic review of empirical studies published in PubMed (N = 80 articles). We found that in some cases, particularly for sleep disturbances and sleep duration, our framework identified robust evidence for associations with affect that are separable by domain, method, and timescale. However, in most other cases, evidence was either inconclusive or too sparse, resulting in no clear patterns. Our review did not find support for granular bidirectionality between sleep and affect. We suggest a roadmap for future studies based on gaps identified by our review and discuss advantages and disadvantages of our granular dimensional framework.
Topics: Adult; Empirical Research; Humans; Self Report; Sleep; Sleep Wake Disorders
PubMed: 36088755
DOI: 10.1016/j.smrv.2022.101670 -
Family Process Mar 2016A systematic review of self-report family assessment measures was conducted with reference to their psychometric properties, clinical utility and theoretical... (Review)
Review
A systematic review of self-report family assessment measures was conducted with reference to their psychometric properties, clinical utility and theoretical underpinnings. Eight instruments were reviewed: The McMaster Family Assessment Device (FAD); Circumplex Model Family Adaptability and Cohesion Evaluation Scales (FACES); Beavers Systems Model Self-Report Family Inventory (SFI); Family Assessment Measure III (FAM III); Family Environment Scale (FES); Family Relations Scale (FRS); and Systemic Therapy Inventory of Change (STIC); and the Systemic Clinical Outcome Routine Evaluation (SCORE). Results indicated that five family assessment measures are suitable for clinical use (FAD, FACES-IV, SFI, FAM III, SCORE), two are not (FES, FRS), and one is a new system currently under-going validation (STIC).
Topics: Family Relations; Humans; Models, Psychological; Psychometrics; Self Report; Surveys and Questionnaires
PubMed: 26582601
DOI: 10.1111/famp.12200 -
Journal of Affective Disorders Jul 2021Hoarding disorder (HD) affects approximately 2.5% of the general population, leads to significant distress and impairment, and is notoriously difficult to treat. The... (Review)
Review
BACKGROUND
Hoarding disorder (HD) affects approximately 2.5% of the general population, leads to significant distress and impairment, and is notoriously difficult to treat. The crux of developing effective treatments for HD is our ability to reliably and validly measure relevant constructs in HD to better understand its presentation and, subsequently, formulate appropriate interventions.
METHODS
We identified measures specific to HD and evaluated their psychometric properties using rating criteria formulated by the Consensus-based Standards for the selection of health Measurement INstruments (COSMIN) group.
RESULTS
The 17 included measures were developed to assess adult and pediatric hoarding severity, functional impairment, and maladaptive processes (e.g., material scrupulosity). The Saving Inventory-Revised, the most widely used measure of HD severity showed the strongest psychometric properties. However, psychometric investigations were generally of poor quality across all measures and results indicated unsatisfactory performance of measures.
LIMITATIONS
The current review excluded non-English measures and ratings inherently contain some element of subjectivity despite use of predetermined criteria and two independent reviewers.
CONCLUSIONS
We suggest that clinical researchers continue to develop and modify measures used to conceptualize and, ultimately, improve treatment for HD.
Topics: Adult; Child; Consensus; Hoarding; Hoarding Disorder; Humans; Psychometrics; Self Report
PubMed: 33993080
DOI: 10.1016/j.jad.2021.04.082 -
Clinical Psychology & Psychotherapy Nov 2022Secure attachment in adulthood is associated with many markers of adaptive functioning. Valid and reliable self-report measures of attachment security could provide a... (Review)
Review
BACKGROUND
Secure attachment in adulthood is associated with many markers of adaptive functioning. Valid and reliable self-report measures of attachment security could provide a practical tool to help advance strengths-based research and clinical work. Previous reviews have not specifically examined the psychometric properties of self-report instruments with respect to secure attachment or systematically appraised the methodological quality of relevant validation studies.
METHOD
A systematic review was completed in accordance with the COSMIN guidelines for reviews of patient-reported outcome measures. The methodological quality of individual studies was evaluated, and results were rated against criteria for good measurement properties.
RESULTS
A total of 40 studies were included in the review, which collectively reported on 24 self-report instruments. The methodological quality of individual studies was variable, and no single instrument was identified as having sufficient evidence of a range of psychometric properties. However, the Attachment Style Questionnaire-Short Form (ASQ-SF), the Cartes-Modèles Individuels de Relations (CAMIR), Cartes-Modèles Individuels de Relations-Reduced (CAMIR-R), and the Psychological Treatment Inventory-Attachment Style Scales (PTI-ASS) had the most robust evidence for the properties assessed.
CONCLUSION
Existing self-report measures assessing adult secure attachment have limited psychometric support. More methodologically robust studies of content validity, reliability, measurement invariance, and construct validity in particular are needed.
Topics: Adult; Humans; Self Report; Reproducibility of Results; Psychometrics; Surveys and Questionnaires
PubMed: 35623630
DOI: 10.1002/cpp.2756 -
Journal of Anxiety Disorders Mar 2021This systematic review and meta-analysis aimed to clarify the association between social anxiety and affective (AE) and cognitive empathy (CE). (Meta-Analysis)
Meta-Analysis Review
OBJECTIVE
This systematic review and meta-analysis aimed to clarify the association between social anxiety and affective (AE) and cognitive empathy (CE).
METHODS
1442 studies from PsycINFO, Medline, and EMBASE (inception-January 2020) were systematically reviewed. Included studies (N = 48) either predicted variance in empathy using social anxiety scores or compared empathy scores between socially anxious individuals and a control group.
RESULTS
Social anxiety and AE were statistically significantly positively associated, k = 14, r = .103 (95%CI [.003, .203]), z = 2.03, p = .043. Sex (Q (2) = 18.79, p < .0001), and type of measures (Q (1 = 7.34, p = .007) moderated the association. Correlations were significant for male samples (r = .316, (95%CI [.200, .432])) and studies using self-report measures (r = .162 (95%CI [.070, .254])). Overall, social anxiety and CE were not significantly associated, k = 52, r =-.021 (95%CI [-.075, .034]), z= -0.74, p = .459. Sample type moderated the association (Q (1) = 5.03, p < .0001). For clinical samples the association was negative (r= -.112, (95%CI [-.201, -.017]).
CONCLUSION
There was evidence for a positive association between social anxiety and AE, but future studies are needed to verify the moderating roles of sex and type of measure. Besides, low CE might only hold for patients with SAD.
Topics: Anxiety; Empathy; Fear; Humans; Male; Self Report
PubMed: 33588287
DOI: 10.1016/j.janxdis.2021.102357 -
Value in Health : the Journal of the... Oct 2022This study aimed to identify and summarize published guidance and recommendations for child self- and proxy assessment of existing child-specific instruments of... (Review)
Review
OBJECTIVES
This study aimed to identify and summarize published guidance and recommendations for child self- and proxy assessment of existing child-specific instruments of health-related quality of life (HRQoL) that are accompanied by utilities.
METHODS
A total of 9 databases plus websites of (1) health technology assessment and health economics outcomes research organizations and (2) instrument developers were systematically searched. Studies were included if they reported guidance for child self- and proxy assessment for child populations (0-18 years old). Three reviewers independently screened titles, abstracts, and full-text reviews against the inclusion criteria. Key features of the guidance identified were summarized.
RESULTS
A total of 19 studies met the inclusion criteria. In general, journal articles provided little guidance on child self- and proxy assessment, with the majority focused on instrument development and psychometric performance more broadly. Instrument developers' websites provided more guidance for child self- and proxy reports with specific guidance found for the EQ-5D-Y and the Pediatric Quality of Life Inventory. This guidance included the minimum age for self-report and mode of administration; recommended proxy types, age range of child for whom proxy report can be completed, and target population; and recall period. Websites of leading organizations provided general guidance on HRQoL evaluation in children but lacked specific guidance about self- and proxy completion.
CONCLUSIONS
EQ-5D-Y and Pediatric Quality of Life Inventory developers' websites provided the most comprehensive guidance for self-report and proxy report of their respective instruments. More evidence is required for developing best practice guidance on why, when, and how to use self- and proxy reports in assessing HRQoL in child populations.
Topics: Adolescent; Child; Child, Preschool; Humans; Infant; Infant, Newborn; Parents; Proxy; Psychometrics; Quality of Life; Self Report; Surveys and Questionnaires
PubMed: 35667950
DOI: 10.1016/j.jval.2022.04.1723 -
Scandinavian Journal of Psychology Apr 2023Self-control is regarded as a necessary trait in almost every aspect of human life. Numerous self-control scales have been developed and utilized in various fields, but... (Review)
Review
Self-control is regarded as a necessary trait in almost every aspect of human life. Numerous self-control scales have been developed and utilized in various fields, but their psychometric characteristics have not been reviewed and evaluated. In this regard, the objective of this review is to identify and evaluate original self-report self-control measures. We examined relevant studies published before November 2021 using Web of Science, PsycArticles, ProQuest, and Medline electronic databases and conducted reference list searches. Then, we selected a total of 34 measures that met the defined selection criteria and evaluated the quality of the instruments using the standards proposed by Terwee and colleagues. Overall, our findings demonstrated that no instruments received a perfect score; however, some performed better than others in quality assessment.
Topics: Humans; Self Report; Psychometrics
PubMed: 36303428
DOI: 10.1111/sjop.12881 -
Journal of Clinical Psychology Jul 2022Shame is a transdiagnostic emotion of strong clinical and research interest. Yet, there is a lack of consensus on the definition and varying methods employed across... (Review)
Review
OBJECTIVE
Shame is a transdiagnostic emotion of strong clinical and research interest. Yet, there is a lack of consensus on the definition and varying methods employed across self-report measures, potentially affecting our ability to accurately study shame and examine whether clinical interventions to alter shame are effective. This paper offers a systematic review of self-report measures of generalized shame.
METHODS
PubMed, PsycInfo, and Web of Science were searched. Studies were included when they were available in English and the primary aim was to evaluate measurement properties of scales or subscales designed to measure generalized shame in adults.
RESULTS
Thirty-six papers examining 19 scales were identified, with measures of trait shame more common than state shame. Construct validity, internal consistency, and structural validity were relative strengths. Development and content validity studies were lacking and suffered from low methodological quality.
CONCLUSIONS
All measures evaluated needed additional research to meet criteria for recommended use.
Topics: Adult; Humans; Psychometrics; Reproducibility of Results; Self Report; Shame
PubMed: 34997972
DOI: 10.1002/jclp.23311 -
Journal of Advanced Nursing Dec 2022To synthesize and evaluate the psychometric properties of self-report instruments that measure patient dignity. (Review)
Review
AIMS
To synthesize and evaluate the psychometric properties of self-report instruments that measure patient dignity.
DESIGN
A psychometric systematic review.
DATA SOURCES
A comprehensive search of studies published from inception until February 17, 2022, was performed using PubMed, Embase, CINAHL, Web of Science, and Scopus.
REVIEW METHODS
The methodological quality of the psychometric studies was evaluated following the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) guidelines.
RESULTS
Eleven self-report instruments that evaluate dignity were identified. For most instruments, psychometric properties, including reliability, cross-cultural validity, responsiveness, and measurement error, had not been adequately examined. The Patient Dignity Inventory (PDI), the Jacelon's Attributed Dignity Scale (JADS), and the Inpatient Dignity Scale (IPDS) had acceptable content validity, structure validity, and internal consistency to measure dignity among adult patients under palliative care, community-dwelling older adults, and inpatients receiving daily care.
CONCLUSION
The PDI, the JADS, and the IPDS are recommended for future clinical practice and research to measure dignity among adult patients under palliative care, community-dwelling older adults, and inpatients receiving daily care. Early identification of patients' dignity-related problems in nursing care can prevent negative health outcomes and help develop a timely intervention to promote patients' health and recovery.
IMPACT
Given that the psychometric properties of the existing self-report dignity instruments have not been systematically assessed, the present review utilized comprehensive methods according to COSMIN to evaluate and determine the most appropriate measure for research and practice. The PDI, the JADS, and the IPDS demonstrated satisfactory psychometric properties and are, thus, recommended for clinical and research applications. Nursing professionals can employ these instruments to assess and promptly identify dignity issues among both young and older adults in hospitals and communities.
Topics: Humans; Aged; Psychometrics; Self Report; Reproducibility of Results; Respect; Inpatients
PubMed: 36070196
DOI: 10.1111/jan.15436