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Development (Cambridge, England) Aug 2023Disabled scientists face tremendous barriers to entry into, and progression within, a scientific career, remaining immensely under-represented at every career stage.... (Review)
Review
Disabled scientists face tremendous barriers to entry into, and progression within, a scientific career, remaining immensely under-represented at every career stage. Disability inclusivity drives in science are increasingly prevalent, but few data are available from the developmental biology community specifically. The Young Embryologist Network sought to draw attention to this by platforming disability inclusivity as a key theme at the 2022 conference. Here, I review literature exploring disabled scientists' experiences in academia, report findings from the conference attendee survey and spotlight a new disability support grant from the British Society for Developmental Biology. I also highlight specific unmet needs and suggest educational resources and actionable measures in the hope of improving the experiences of disabled scientists in our community.
Topics: Developmental Biology; Disabled Persons; Humans
PubMed: 37602647
DOI: 10.1242/dev.201905 -
The Journal of Nutrition, Health & Aging Mar 2024This Mini-Review showcases the latest evidence on rehabilitation opportunities for older people with multimorbidity and frailty. There is growing evidence, that a... (Review)
Review
This Mini-Review showcases the latest evidence on rehabilitation opportunities for older people with multimorbidity and frailty. There is growing evidence, that a person-centered and contextualized rehabilitation approach may offer benefits, not only in the context of preserving mobility, but especially targeting social participation. Modern rehabilitation aligns with the bio-psycho-social model of the International Classification of Functioning, Disability and Health (ICF), emphasizing the individual and collaboratively determined definition of personalized rehabilitation goals at the activity and participation level. Further studies are warranted to evaluate objective outcome-measurement tools within the domains of activity and participation.
Topics: Humans; Aged; Frailty; Disabled Persons; Social Participation; Disability Evaluation; Activities of Daily Living
PubMed: 38492946
DOI: 10.1016/j.jnha.2023.100012 -
International Journal of Environmental... Oct 2023This paper explores the concepts of inclusion, participation, and belonging in the context of development for children with disabilities. The importance of creating an... (Review)
Review
This paper explores the concepts of inclusion, participation, and belonging in the context of development for children with disabilities. The importance of creating an environment that embraces diversity, encourages active engagement, and nurtures a sense of belonging for children is discussed. The authors provide insights into the benefits of inclusive practices, strategies to enhance participation, and methods to foster a sense of belonging in children with disabilities. The authors argue that service providers and service systems must move beyond fostering social inclusion and inclusive education, although emphasized globally, and focus on promoting participation and ultimately belonging to ensure that children with disabilities are full members of their communities.
Topics: Child; Humans; Disabled Persons; Social Inclusion
PubMed: 37887645
DOI: 10.3390/ijerph20206907 -
Developmental Medicine and Child... Feb 2024Despite decades of international entreaties for improvement, education about and provision of healthcare for people with disabilities remains harmfully inferior to that... (Review)
Review
Despite decades of international entreaties for improvement, education about and provision of healthcare for people with disabilities remains harmfully inferior to that of the non-disabled population. Many obstacles confound efforts to ameliorate this inequity, perhaps the most pernicious of which is negative bias on the part of providers. Narrative medicine offers a means to address healthcare attitudes towards people with disabilities, in particular negative attitudes based on 'ableism'. Through absorbing, writing, and sharing of diverse perspectives, narrative medicine kindles imagination and empathy, promoting self-reflection. This approach enriches the students' capacity to absorb what their patients are trying to say, and to appreciate, respect, and hopefully meet the healthcare needs of people with disability. WHAT THIS PAPER ADDS: Narrative medicine is a pedagogical tool to help providers listen and reflect on patients with disabilities.
Topics: Humans; Narrative Medicine; Disabled Persons; Delivery of Health Care; Empathy
PubMed: 37390126
DOI: 10.1111/dmcn.15685 -
Journal of Intellectual Disabilities :... Sep 2023
Topics: Humans; Intellectual Disability; Disabled Persons; Quality of Life; Disability Evaluation
PubMed: 37450663
DOI: 10.1177/17446295231190733 -
Language, Speech, and Hearing Services... Jul 2023This viewpoint will expose readers to disability as a social construct shaped by power and oppression, not an individual medical issue defined by diagnosis. As...
PURPOSE
This viewpoint will expose readers to disability as a social construct shaped by power and oppression, not an individual medical issue defined by diagnosis. As professionals, we are doing a disservice if we continue to silo the disability experience to the limits of service delivery. We must intentionally seek ways to challenge how we think, view, and respond to disability to ensure that our approach is consistent with the current needs of the disability community.
CONCLUSIONS
Specific practices related to accessibility and universal design will be highlighted. Strategies to embrace disability culture will be discussed as it is vital to bridge the gap between school and community.
Topics: Humans; Disabled Persons; Schools
PubMed: 37059085
DOI: 10.1044/2023_LSHSS-22-00142 -
Sante Publique (Vandoeuvre-les-Nancy,... 2024In this article, we offer an overview of the Capdroits participatory research approach, initially focusing on the controversy surrounding Article 12 of the International...
INTRODUCTION
In this article, we offer an overview of the Capdroits participatory research approach, initially focusing on the controversy surrounding Article 12 of the International Convention of Persons with Disabilities, “Recognition of legal personality under conditions of equality.” Its objective is to encourage the participation of the people concerned by Article 12. It brings together academic researchers, experts in support relationships, and people directly concerned by impediment situations.
PURPOSE OF THE STUDY
In this contribution, we present our participatory research approach, the methodology of “public problem-solving” and the ways in which it was deployed. We will show how productions and evaluations have been made accessible, while identifying the tensions at work.
RESULTS
Two phases of research have been developed and deployed since 2015, based on an experimental “public problem-solving” methodology. Several collaborative productions have been developed, intended for various types of reception and made possible thanks to accessibility practices. They nevertheless highlight the tensions produced in the participatory processes.
CONCLUSIONS
The epistemology that we have been collectively developing since 2015 radically aims to reduce social and cognitive inequalities by promoting experiential knowledge while perpetuating inequalities. Our ability to dialogue [14] is the basis for co-constructing a radical epistemology, which, while imperfect, is profoundly purposeful.
Topics: Humans; Disabled Persons; Human Rights
PubMed: 38360778
DOI: No ID Found -
The Lancet. Public Health May 2024Health systems often fail people with disabilities, which might contribute to their shorter life expectancy and poorer health outcomes than people without disabilities.... (Review)
Review
Health systems often fail people with disabilities, which might contribute to their shorter life expectancy and poorer health outcomes than people without disabilities. This Review provides an overview of the existing evidence on health inequities faced by people with disabilities and describes existing approaches to making health systems disability inclusive. Our Review documents a broad range of health-care inequities for people with disabilities (eg, lower levels of cancer screening), which probably contribute towards health differentials. We identified 90 good practice examples that illustrate current strategies to reduce inequalities. Implementing such strategies could help to ensure that health systems can expect, accept, and connect people with disabilities worldwide, deliver on their right to health, and achieve health for all.
Topics: Humans; Disabled Persons; Healthcare Disparities; Delivery of Health Care
PubMed: 38702096
DOI: 10.1016/S2468-2667(24)00042-2 -
The Lancet. Neurology Sep 2023
Topics: Humans; Brain; Head; Disabled Persons
PubMed: 37595998
DOI: 10.1016/S1474-4422(23)00236-3 -
Disability and Health Journal Oct 2023People who work with disabled people or whose work is about disability - disability professionals - often have direct power over disabled people and can impact their...
BACKGROUND
People who work with disabled people or whose work is about disability - disability professionals - often have direct power over disabled people and can impact their lives immensely; they also have a role in creating and institutionalizing knowledge about disability.
OBJECTIVE
The aim of this study was to examine the explicit (conscious) and implicit (unconscious) disability attitudes of disability professionals.
METHODS
Between October 2021 and February 2023, disability professionals (n = 417) completed the Symbolic Ableism Scale (SAS) and the Disability Attitudes Implicit Association Test (DA-IAT). We had the following research questions: (1.) What are disability professionals' explicit attitudes towards disability? (2.) What are disability professionals' implicit attitudes towards disability? (3.) What is the relationship between disability professionals' explicit and implicit disability attitudes? and (4.) What sociodemographic factors correlate with disability professionals' explicit and implicit disability attitudes? We examined these questions using descriptive statistics, t-tests, a two-dimensional model of prejudice, and linear regression models.
RESULTS
In our sample, 77.24% of disability professionals preferred nondisabled people explicitly and 82.03% implicitly. Most commonly, disability professionals were symbolic ableists (37.8%). Race, political orientation, and job type correlated with disability professionals' explicit attitudes, while disability, gender, and job type correlated with their implicit attitudes.
CONCLUSIONS
Ableism cannot be eradicated until disability professionals look inward and rid themselves of negative attitudes; until that occurs, disability professionals will continue to do a disservice to the very people they have dedicated their careers to - disabled people.
Topics: Humans; Disabled Persons; Prejudice; Attitude; Social Discrimination
PubMed: 37271640
DOI: 10.1016/j.dhjo.2023.101482