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Sante Publique (Vandoeuvre-les-Nancy,... 2024Professional activity represents an injunction to participate in the collective and sustains our identity. Being deprived of it can lead to social exclusion. At the same...
INTRODUCTION
Professional activity represents an injunction to participate in the collective and sustains our identity. Being deprived of it can lead to social exclusion. At the same time, the injunction to autonomy is prevalent in our society. The disabled person can suffer from social stigmatization and find himself in tension between disability/autonomy/work. Work is then essential to identify oneself as a worker and not as a dependent person.
PURPOSE OF RESEARCH
The participatory research presented has a dual objective: to give a voice to a stigmatized population - disabled workers - and their families; to understand and analyze with them the strategies used to work or remain in employment and the impact of these strategies on health at work and the relationship to risks.
RESULTS
Exchanges between the peer Group and the scientific team enabled us to refine the initial questions, to reformulate analyses, to modify communication supports, to make them more acceptable and accessible. This participatory approach has modified our research practices by guaranteeing that the people concerned by the research become actors in it.
CONCLUSIONS
For populations suffering from symbolic domination, participatory research makes it possible to restore the confidence of individuals and the legitimacy of experiential knowledge.
Topics: Humans; Disabled Persons; Employment; Occupations
PubMed: 38360773
DOI: No ID Found -
Medical Humanities Sep 2023Human-centred design methodologies provide a means to align bioethical advocacy with the needs and desires of disabled people. As a method, human-centred design seeks to...
Human-centred design methodologies provide a means to align bioethical advocacy with the needs and desires of disabled people. As a method, human-centred design seeks to locate points of friction in an individual's experience of everyday interactions, specifically in relation to technologies, but potentially in relation to processes and institutions. By focusing on disabled persons and their experiences of institutional organisation, human-centred design practices serve to create a foundation for a bioethical practice that addresses idiosyncratic needs and desires while providing support for disabled persons and their families. In considering how a design-focused bioethics might operate in this way, I focus on advanced sleep phase syndrome and delayed sleep phase syndrome as a way to show how the temporal ordering of institutions disable the participation of individuals with atypical sleep needs. I then turn to the education of deaf students through the exclusive use of sound, which puts them at a significant disadvantage relative to their hearing peers; this example shows how normative ableism obscures itself in attempts to aid disabled people, but an attention to the experience of deaf students show how exclusively auditory learning can be redesigned. Advocating for flexible institutional organisation and practices situates bioethical advocacy as a means to engage with social organisations in ways that create novel opportunities for able-bodied and disabled people alike.
Topics: Humans; Disabled Persons; Bioethics
PubMed: 36564182
DOI: 10.1136/medhum-2022-012391 -
Nursing Outlook 2024
Topics: Humans; Nursing; Disabled Persons; Forecasting
PubMed: 38553132
DOI: 10.1016/j.outlook.2024.102155 -
American Journal of Community Psychology Dec 2023People living with physical, sensory, intellectual, and/or developmental disabilities experience complex social, environmental, political, and cultural challenges along... (Review)
Review
People living with physical, sensory, intellectual, and/or developmental disabilities experience complex social, environmental, political, and cultural challenges along with stigma and marginalization in education, employment, and community life. These multiple and complex barriers often hinder their full and effective participation in society. In this reflection, we curated articles on physical, sensory, intellectual, and/or developmental disabilities published in the American Journal of Community Psychology from 1973 to 2022. We reviewed titles and abstracts to identify themes that grouped manuscripts in relevant community psychology core concepts and values. From our analysis, five themes emerged: (a) promoting empowerment and advocacy; (b) promoting organizations and settings that support people with disabilities; (c) including people with disabilities in knowledge production; (d) promoting social justice in disability research, and (e) promoting support networks of families of people with disabilities. We conclude this reflection with a discussion of recommendations for future research, practice, and a call to action.
Topics: Humans; Disabled Persons; Social Justice; Employment; Intellectual Disability
PubMed: 37853910
DOI: 10.1002/ajcp.12710 -
Journal of Continuing Education in... May 2024
Topics: Humans; Education, Nursing, Continuing; Disabled Persons; Curriculum; Adult; Disability Discrimination
PubMed: 38687100
DOI: 10.3928/00220124-20240411-01 -
Community Dentistry and Oral... Aug 2023The social determinants of health impact disproportionately on disabled people creating a cumulative risk of unequal oral health outcomes, compounded by impairment.... (Review)
Review
The social determinants of health impact disproportionately on disabled people creating a cumulative risk of unequal oral health outcomes, compounded by impairment. Problems in early life, education and employment, poor social status and support, social exclusion, poverty and stress characterize the life course of many disabled people. Ableism and exclusion combine to ensure that disabled voices are rarely heard, ignorance and indifference lead to prejudice in policy-making and enforcement and negative media attitudes fuelled by political austerity lead to stigmatization. Yet, the health disparities experienced by disabled people are still perceived as being uniquely caused by a medical condition or impaired body function, excluding disabled people from the inequalities discourse. In parallel, the influence of medical conditions within other marginalized groups are minimized (e.g. mental health), leading to the underestimation of the impact of disability on oral health generally. The common ground between all groups subject to oral health inequalities can be conceptualized using the WHO International Classification of Functioning. Outcomes for all might be improved by emphasizing this common ground; by considering disability as a primary variable, such as gender or age; by identifying disabled people within existing inequalities research; and by explicitly including disabled people in future research.
Topics: Humans; Oral Health; Disabled Persons; Prejudice; Mental Health
PubMed: 36732929
DOI: 10.1111/cdoe.12843 -
Revista Da Associacao Medica Brasileira... 2023Women and men can have the same illnesses, but with different prevalence and reactions to symptoms.
UNLABELLED
Women and men can have the same illnesses, but with different prevalence and reactions to symptoms.
OBJECTIVE
This study aimed to emphasize that distinct traits between men and women require a different approach for each of them.
METHODS
PubMed and Google Scholar were searched using the following terms: Disability Evaluations, Women's health, Osteoporosis, Osteoarthritis, and Lymphedema, Pregnancy.
RESULTS/CONCLUSION
Disease management can go beyond the symptoms, assessing the long-term consequences and possibly the disabilities they can generate, compromising the quality of life of the person, his/her family members, and eventually caregivers.
Topics: Humans; Pregnancy; Female; Male; Quality of Life; Women's Health; Disabled Persons; Caregivers
PubMed: 37556634
DOI: 10.1590/1806-9282.2023S115 -
Development (Cambridge, England) Aug 2023In recent years, we have seen an increasing focus in the academic environment on equity, diversity and inclusion. However, one broad group often left out of these...
In recent years, we have seen an increasing focus in the academic environment on equity, diversity and inclusion. However, one broad group often left out of these discussions are disabled scientists/scientists with disabilities, who often face severe challenges entering the research profession and navigating their careers. Building on the success of the 2022 Young Embryologist Network's meeting, which included a session on 'Working in science with a disability' ( Morgan, 2023) we learn here from the lived experiences of five biologists who share the challenges and successes of undertaking a scientific career with a disability, as well as accommodations that can make science, technology, engineering, mathematics and medicine (STEMM) careers more accessible and inclusive.
Topics: Humans; Disabled Persons; Research; Career Choice
PubMed: 37602743
DOI: 10.1242/dev.201906 -
BMJ (Clinical Research Ed.) Oct 2023
Topics: Humans; Sexual Behavior; Disabled Persons; Delivery of Health Care; Reproductive Health
PubMed: 37852639
DOI: 10.1136/bmj.p2395 -
Journal of Genetic Counseling Dec 2023The genetic counseling (GC) community has faced criticism about the duality of promoting patient autonomy while also advocating for individuals with disabilities. This...
The genetic counseling (GC) community has faced criticism about the duality of promoting patient autonomy while also advocating for individuals with disabilities. This study assessed the attitudes of the disability community and GCs to identify content that should be included in GC disability education and evaluate the landscape of GC disability education. Members of the disability community and GCs completed an electronic survey distributed through electronic listservs and partnering organizations. A total of 672 responses were analyzed from both the disability community (n = 596) and the GC community (n = 76). Members of the disability community noted differences in GC comfort level discussing different aspects of disability with GCs being perceived as being very knowledgeable about medical aspects 71% of the time versus 49% of the time when discussing social/lifestyle aspects of disability. This discordance was reflected in GCs reported comfort level in discussing medical aspects (89%) and social aspects of disability (65%) during a session. Most GC respondents (71%) felt they received adequate knowledge during their disability education and variation was reported in the execution of disability education by training programs. Disability education content recommendations from the disability community and GCs included emphasizing four key aspects of disability: medical, social/lifestyle, lived experience, and the disability rights movement. Respondents of both cohorts stressed the inclusion of and exposure to persons with disabilities in disability education to understand the lived experience of persons with disabilities. The disability community identified additional disability education content to be included such as empathy training, family hardships, and mental health. The results of this study have practice implications and provide a foundation for training expectations to ensure future GCs possess the necessary skills to improve the quality of services provided to families and persons with disabilities.
Topics: Humans; Counselors; Disabled Persons; Genetic Counseling; Surveys and Questionnaires
PubMed: 37877329
DOI: 10.1002/jgc4.1800