-
Biomolecules Dec 2021In the last decade, genome editing technologies became very effective and several clinical trials have been started in order to use them for treating some genetic... (Review)
Review
In the last decade, genome editing technologies became very effective and several clinical trials have been started in order to use them for treating some genetic diseases. Interestingly, despite more than 50 years of discussion about the frontiers of genetics in human health and evolution, the debate about the bioethics and the regulatory practices of genome editing is still far from satisfactory answers. This delay results from an excessive emphasis on the effectiveness of the genome editing technologies that is relevant for the regulatory practices, but not at a bioethical level. Indeed, other factors (such as accessibility and acceptability) could make these techniques not accepted at the bioethical level, even in the presence of their 100% effectiveness.
Topics: Bioethics; CRISPR-Cas Systems; Gene Editing; History, 20th Century; History, 21st Century; Humans
PubMed: 35053161
DOI: 10.3390/biom12010013 -
Neuron Feb 2019
Topics: Bioethics; Congresses as Topic; Neurosciences
PubMed: 30731058
DOI: 10.1016/j.neuron.2019.01.041 -
Journal of Bioethical Inquiry Sep 2021
Topics: Bioethics; Humans; Social Justice
PubMed: 34669092
DOI: 10.1007/s11673-021-10129-9 -
The New Bioethics : a Multidisciplinary... Sep 2019
Topics: Bioethics; Congresses as Topic; Conscience; Delivery of Health Care
PubMed: 31498055
DOI: 10.1080/20502877.2019.1659485 -
The Hastings Center Report May 2017I once heard John Arras, who was one of bioethics' bright lights and, toward the end of his life, a member of the Presidential Commission for the Study of Bioethical...
I once heard John Arras, who was one of bioethics' bright lights and, toward the end of his life, a member of the Presidential Commission for the Study of Bioethical Issues, remark that it is hard for an ethics commission not to "do paint-by-numbers ethics." What I think Arras had in mind is an approach that, in the set of essays that make up this special report, Rebecca Dresser describes as a listing of "general, often relatively uncontroversial" moral positions to support largely procedural recommendations. Arras was calling attention to one of the challenges and sometimes frustrations of commission thinking. It is a recurring topic in this special report, Goals and Practices of Public Bioethics, which features a series of reflections about how national bioethics commissions around the world have contributed to public understanding and public policy about bioethical issues. Both the topic and the authors are drawn from the final two public meetings of the PCSBI, which was the most recent U.S. example of a national bioethics commission and whose winding down created an occasion for pondering the different forms and functions of bioethics commissions.
Topics: Bioethical Issues; Bioethics; Decision Making; Ethics Committees; Humans; Morals; Policy Making; Politics; Public Policy; United States
PubMed: 28543655
DOI: 10.1002/hast.709 -
Journal of Bioethical Inquiry Jun 2023
Topics: Humans; Bioethics; Rural Health
PubMed: 37233963
DOI: 10.1007/s11673-023-10259-2 -
Life Sciences, Society and Policy 2015This editorial presents the background for the article collection 'ELSA and RRI'. It sets the stage for the topics discussed in the collection and briefly presents the...
This editorial presents the background for the article collection 'ELSA and RRI'. It sets the stage for the topics discussed in the collection and briefly presents the different contributions. It concludes by opening up for continued discussion of the relations between ELSA and RRI.
Topics: Bioethics; Biomedical Research; Biomedical Technology; Genomics; Humans; Social Responsibility; Translational Research, Biomedical
PubMed: 26085312
DOI: 10.1186/s40504-014-0021-8 -
Journal of Bioethical Inquiry Mar 2021The U.S. healthcare system has a long history of displaying racist contempt toward Black people. From medical schools' use of enslaved bodies as cadavers to the...
The U.S. healthcare system has a long history of displaying racist contempt toward Black people. From medical schools' use of enslaved bodies as cadavers to the widespread hospital practice of reporting suspected drug users who seek medical help to the police, the institutional practices and policies that have shaped U.S. healthcare systems as we know them cannot be minimized as coincidence. Rather, the very foundations of medical discovery, diagnosis, and treatment are built on racist contempt for Black people and have become self-perpetuating. Yet, I argue that bioethics and bioethicists have a role in combatting racism. However, in order to do so, bioethicists have to understand the workings of contemptuous racism and how that particular form of racism manifests in U.S. healthcare institutions. Insofar as justice is part of the core mission of bioethics, then antiracism must also be part of the mission of bioethics.
Topics: Black or African American; Bioethics; Disgust; Ethicists; Humans; Racism
PubMed: 33415595
DOI: 10.1007/s11673-020-10070-3 -
Comptes Rendus Biologies 2015The paper is about the links between ethics and science, at a time (1974-2014) when the life sciences expanded rapidly. First (1974-1994), the development of a...
The paper is about the links between ethics and science, at a time (1974-2014) when the life sciences expanded rapidly. First (1974-1994), the development of a principlist ethics, set out by philosophers, sustained the research, and the scientists, expected to behave responsibly, felt like they could easily converge towards impeccable and consensual solutions to any problem arising from scientific innovations. Later on (1994-2014), however, while yielding ground to social sciences and ground work, bioethics took an empirical turn; then it became clear that behaving responsibly was compatible with a plurality of divergent normative convictions. Ethics crumbled. Local or national policies restored order, so-called bioethical laws short-circuited ethical reflection. And far from being respected as the wise men, apt to recommend the very best solutions to problems raised by new scientific advances, researchers happened to be deemed irresponsible, as some of them were suspected of lacking intellectual integrity.
Topics: Bioethics; Biological Science Disciplines; History, 20th Century; History, 21st Century; Humans; Public Policy
PubMed: 26234963
DOI: 10.1016/j.crvi.2015.07.001 -
Soins; La Revue de Reference Infirmiere May 2020
Topics: Bioethical Issues; Bioethics; Humans
PubMed: 32862959
DOI: 10.1016/S0038-0814(20)30078-5