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Biomolecules Dec 2021In the last decade, genome editing technologies became very effective and several clinical trials have been started in order to use them for treating some genetic... (Review)
Review
In the last decade, genome editing technologies became very effective and several clinical trials have been started in order to use them for treating some genetic diseases. Interestingly, despite more than 50 years of discussion about the frontiers of genetics in human health and evolution, the debate about the bioethics and the regulatory practices of genome editing is still far from satisfactory answers. This delay results from an excessive emphasis on the effectiveness of the genome editing technologies that is relevant for the regulatory practices, but not at a bioethical level. Indeed, other factors (such as accessibility and acceptability) could make these techniques not accepted at the bioethical level, even in the presence of their 100% effectiveness.
Topics: Bioethics; CRISPR-Cas Systems; Gene Editing; History, 20th Century; History, 21st Century; Humans
PubMed: 35053161
DOI: 10.3390/biom12010013 -
Journal of Bioethical Inquiry Jun 2023
Topics: Humans; Bioethics; Rural Health
PubMed: 37233963
DOI: 10.1007/s11673-023-10259-2 -
Journal of Bioethical Inquiry Sep 2021
Topics: Bioethics; Humans; Social Justice
PubMed: 34669092
DOI: 10.1007/s11673-021-10129-9 -
The Hastings Center Report May 2017I once heard John Arras, who was one of bioethics' bright lights and, toward the end of his life, a member of the Presidential Commission for the Study of Bioethical...
I once heard John Arras, who was one of bioethics' bright lights and, toward the end of his life, a member of the Presidential Commission for the Study of Bioethical Issues, remark that it is hard for an ethics commission not to "do paint-by-numbers ethics." What I think Arras had in mind is an approach that, in the set of essays that make up this special report, Rebecca Dresser describes as a listing of "general, often relatively uncontroversial" moral positions to support largely procedural recommendations. Arras was calling attention to one of the challenges and sometimes frustrations of commission thinking. It is a recurring topic in this special report, Goals and Practices of Public Bioethics, which features a series of reflections about how national bioethics commissions around the world have contributed to public understanding and public policy about bioethical issues. Both the topic and the authors are drawn from the final two public meetings of the PCSBI, which was the most recent U.S. example of a national bioethics commission and whose winding down created an occasion for pondering the different forms and functions of bioethics commissions.
Topics: Bioethical Issues; Bioethics; Decision Making; Ethics Committees; Humans; Morals; Policy Making; Politics; Public Policy; United States
PubMed: 28543655
DOI: 10.1002/hast.709 -
Acta Ortopedica Mexicana 2011
Topics: Bioethics; Humanism; Humans
PubMed: 22512119
DOI: No ID Found -
Monash Bioethics Review Dec 2023There are increasing pressures for bioethics to emphasise 'translation'. Against this backdrop, we defend 'speculative bioethics'. We explore speculation as an important...
There are increasing pressures for bioethics to emphasise 'translation'. Against this backdrop, we defend 'speculative bioethics'. We explore speculation as an important tool and line of bioethical inquiry. Further, we examine the relationship between speculation and translational bioethics and posit that speculation can support translational work. First, speculative research might be conducted as ethical analysis of contemporary issues through a new lens, in which case it supports translational work. Second, speculation might be a first step prior to translational work on a topic. Finally, speculative bioethics might constitute different content altogether, without translational objectives. For each conception of speculative bioethics, important methodological aspects determine whether it constitutes good bioethics research. We conclude that whether speculative bioethics is compatible with translational bioethics-and to what extent-depends on whether it is being employed as tool or content. Applying standards of impact uniformly across bioethics may inappropriately limit speculative bioethics.
Topics: Humans; Bioethics; Bioethical Issues
PubMed: 37770722
DOI: 10.1007/s40592-023-00181-z -
Journal International de Bioethique =... 2013
Topics: Bioethics; Cooperative Behavior; Humans; Teaching
PubMed: 23991540
DOI: 10.3917/jib.242.0011 -
Croatian Medical Journal Feb 2013
Topics: Bioethics; Ethics, Medical; Humans
PubMed: 23444239
DOI: 10.3325/cmj.2013.54.1 -
The Journal of Medicine and Philosophy Apr 2023The phenomenology of bioethics is approached here in relation to the lived experience as it relates to the everyday lifeworld of persons suffering from mental illness....
The phenomenology of bioethics is approached here in relation to the lived experience as it relates to the everyday lifeworld of persons suffering from mental illness. Taking a road less traveled, the purpose here is to elucidate ethical issues relating to sociality, using findings from qualitative phenomenological psychological research. Qualitative studies of schizophrenia and postpartum depression serve as examples. Layered throughout is the applied phenomenological argument pointing to the importance of returning to mundane intersubjectivity and the reversibility between mental illness, the existential context of suffering, and sociality.
Topics: Female; Humans; Mental Disorders; Bioethics; Social Behavior; Anxiety
PubMed: 37078728
DOI: 10.1093/jmp/jhad002 -
Soins; La Revue de Reference Infirmiere May 2020
Topics: Bioethical Issues; Bioethics; Humans
PubMed: 32862959
DOI: 10.1016/S0038-0814(20)30078-5