-
Biomolecules Dec 2021In the last decade, genome editing technologies became very effective and several clinical trials have been started in order to use them for treating some genetic... (Review)
Review
In the last decade, genome editing technologies became very effective and several clinical trials have been started in order to use them for treating some genetic diseases. Interestingly, despite more than 50 years of discussion about the frontiers of genetics in human health and evolution, the debate about the bioethics and the regulatory practices of genome editing is still far from satisfactory answers. This delay results from an excessive emphasis on the effectiveness of the genome editing technologies that is relevant for the regulatory practices, but not at a bioethical level. Indeed, other factors (such as accessibility and acceptability) could make these techniques not accepted at the bioethical level, even in the presence of their 100% effectiveness.
Topics: Bioethics; CRISPR-Cas Systems; Gene Editing; History, 20th Century; History, 21st Century; Humans
PubMed: 35053161
DOI: 10.3390/biom12010013 -
Acta Ortopedica Mexicana 2011
Topics: Bioethics; Humanism; Humans
PubMed: 22512119
DOI: No ID Found -
The Hastings Center Report May 2017I once heard John Arras, who was one of bioethics' bright lights and, toward the end of his life, a member of the Presidential Commission for the Study of Bioethical...
I once heard John Arras, who was one of bioethics' bright lights and, toward the end of his life, a member of the Presidential Commission for the Study of Bioethical Issues, remark that it is hard for an ethics commission not to "do paint-by-numbers ethics." What I think Arras had in mind is an approach that, in the set of essays that make up this special report, Rebecca Dresser describes as a listing of "general, often relatively uncontroversial" moral positions to support largely procedural recommendations. Arras was calling attention to one of the challenges and sometimes frustrations of commission thinking. It is a recurring topic in this special report, Goals and Practices of Public Bioethics, which features a series of reflections about how national bioethics commissions around the world have contributed to public understanding and public policy about bioethical issues. Both the topic and the authors are drawn from the final two public meetings of the PCSBI, which was the most recent U.S. example of a national bioethics commission and whose winding down created an occasion for pondering the different forms and functions of bioethics commissions.
Topics: Bioethical Issues; Bioethics; Decision Making; Ethics Committees; Humans; Morals; Policy Making; Politics; Public Policy; United States
PubMed: 28543655
DOI: 10.1002/hast.709 -
Croatian Medical Journal Feb 2013
Topics: Bioethics; Ethics, Medical; Humans
PubMed: 23444239
DOI: 10.3325/cmj.2013.54.1 -
Journal of Bioethical Inquiry Sep 2021
Topics: Bioethics; Humans; Social Justice
PubMed: 34669092
DOI: 10.1007/s11673-021-10129-9 -
Journal of Bioethical Inquiry Jun 2023
Topics: Humans; Bioethics; Rural Health
PubMed: 37233963
DOI: 10.1007/s11673-023-10259-2 -
Comptes Rendus Biologies 2015The paper is about the links between ethics and science, at a time (1974-2014) when the life sciences expanded rapidly. First (1974-1994), the development of a...
The paper is about the links between ethics and science, at a time (1974-2014) when the life sciences expanded rapidly. First (1974-1994), the development of a principlist ethics, set out by philosophers, sustained the research, and the scientists, expected to behave responsibly, felt like they could easily converge towards impeccable and consensual solutions to any problem arising from scientific innovations. Later on (1994-2014), however, while yielding ground to social sciences and ground work, bioethics took an empirical turn; then it became clear that behaving responsibly was compatible with a plurality of divergent normative convictions. Ethics crumbled. Local or national policies restored order, so-called bioethical laws short-circuited ethical reflection. And far from being respected as the wise men, apt to recommend the very best solutions to problems raised by new scientific advances, researchers happened to be deemed irresponsible, as some of them were suspected of lacking intellectual integrity.
Topics: Bioethics; Biological Science Disciplines; History, 20th Century; History, 21st Century; Humans; Public Policy
PubMed: 26234963
DOI: 10.1016/j.crvi.2015.07.001 -
Journal International de Bioethique =... 2013
Topics: Bioethics; Cooperative Behavior; Humans; Teaching
PubMed: 23991540
DOI: 10.3917/jib.242.0011 -
Theoretical Medicine and Bioethics Aug 2021This paper explores an emerging sub-field of both empirical bioethics and experimental philosophy, which has been called "experimental philosophical bioethics"...
This paper explores an emerging sub-field of both empirical bioethics and experimental philosophy, which has been called "experimental philosophical bioethics" (bioxphi). As an empirical discipline, bioxphi adopts the methods of experimental moral psychology and cognitive science; it does so to make sense of the eliciting factors and underlying cognitive processes that shape people's moral judgments, particularly about real-world matters of bioethical concern. Yet, as a normative discipline situated within the broader field of bioethics, it also aims to contribute to substantive ethical questions about what should be done in a given context. What are some of the ways in which this aim has been pursued? In this paper, we employ a case study approach to examine and critically evaluate four strategies from the recent literature by which scholars in bioxphi have leveraged empirical data in the service of normative arguments.
Topics: Bioethics; Ethical Theory; Humans; Judgment; Morals; Philosophy
PubMed: 34787789
DOI: 10.1007/s11017-021-09546-z -
Swiss Medical Weekly Oct 2022
Topics: Humans; Mpox (monkeypox); Bioethics
PubMed: 36342973
DOI: 10.57187/smw.2022.40003